On my way to the #ScrapTheGreenPaper (on #disabilityreform) protest outside Leinster House (which houses the Irish parliament). These proposals if implemented would make life a lot more difficult for many with #disabilities and disabling illnesses. 😡
I have recently had anti-racism and anti-colonialism as special interests (before I knew what that term meant).
It was with this context that I had an event which removed doubt I am Autistic.
I've noticed how there are many different forms of diversity that have been pathologized over the centuries in certain cultures (time isn't evenly distributed -- pathologizing people based on "race" is still common, and Eugenics is ongoing).
@halcionandon@disabilityjustice I am in the US and my pain management provider usually only makes me go in every other month I just called for a refill on the off months.
Last month I asked if I could increase my dose by 5 mg a day because I’m just not getting enough coverage with the amount of insomnia that I experience. She agreed but only if I would come in next month rather than call in. I laughed and I was like yeah I can come in whenever I’m like 15 minutes down the road. But I am well aware that they are just trying to get as much revenue as they can before the end of the year. And I’m not objecting because I really do need the extra 5 mg. But it feels gross that it was presented that way.
And man, just having that extra 5 mg if I need it made such a difference, I have noticed that about half the days I don’t even take it because I don’t need it. But knowing I have it if I caused myself extra pain makes it easier for me to do what I need to do because I don’t have to worry that I will be an extra pain later because I can do something about it if I am.
Of course I still have to pace because of the #MECFS but at least I know I don’t have to put myself to bed at 6 PM on a heating pad because the pain is just overwhelming.
The nice thing about digital art is it never has to be finished. On this one I got too deep into the image. There's a lot going on you can't see cuz the midtones are too dark...
The non-gendered warrior SHOULD be creating themself (to coin language) out of and battling dark chaos, a bright spark headed toward a dim light... they never know if there's a goal...
Does anyone know of any good journal articles or essays on how one's perspective on disability rights and/or disability justice can be influenced by whether one is born disabled or later becomes disabled (and how long one has been disabled if one becomes disabled), and one's connection to disabled community? @disability#InternalizedAbleism#Disability
The rules for SSDI/SSI and a lot of other ableist policing are like the old trial by water for witches:
If we toss you in the water and you drown, you're innocent and not a witch, but you're dead.
If we toss you in the water and you swim or float in the water we've tossed you in, you're a witch and therefore we kill you by burning you. @disability#Ableism#Disability
At the time UC Access Now released the Demandifesto on the 30th Anniversary of the passage of the Americans with Disabilities Act, the UC Board of Regents had not discussed disability/accessibility for TEN YEARS.
UC Access Now was the 1st org we know of that advocated for a systemic approach to dismantling ableism throughout UC - prior to us, ppl were focused mostly on students, only at one campus. UC brass have ignored us as much as they can, even when cherry-picking things to improve from our analysis.
@disability How will this Office of DIsability Rights go? Well, if we don't see UC acknowledging and relying upon the expertise of UC Access Now coalition members, if we don't see them taking the things currently easily within their power - their own communications, events, training programs, and projects begun hereafter - and making them highest common denominator by default...we know it's just another way of extenuating people's fights for justice...another delay before having to sue in court. #UCAccessNow#Disability#Accessibility#DIsabilityLaw
@disability Help us find more folks in the University of California anti-ableist community. Urge your friends to follow this account so when news like this breaks, we can make sure folks know more details than they're likely to get in any media coverage. #UCAccessNow#Disability#Accessibility#DIsabilityLaw
Doctor appt today, and he happily wrote up all the pain relief I needed prescribed for my shoulder.
I thought it might be difficult to get him to prescribe endone, panadeine forte, mobic, panadol osteo, and palexia.. but we went over how I was taking them all and he agreed that I was fine with how I was approaching it - and that taking such a variety of things meant actually taking less opioid based meds because I was able to keep on top of the pain with things like panadol osteo.
We also did my mental health plan and I hit a 40 on the K10.. which is Very Fucking High. We talked about that, and about how therapy is helping and that a big part of the 40 score is probably actually pain related as well.
He agreed that I showed great insight into my illness and that I was comfortable with being vulnerable enough to ask for help, so I get to skip hospitalisation (fucking yay!) because I have a good support system and I know how to access acute assistance if needed.
But still, 40 was even higher than I was expecting tbh. I'm usually around a 25-27.
I woke up having a hypo this morning and I don't know if I still feel gross after that, if I'm getting sick, if it's a fibro flare, or if my body is just overreacting to the sudden change in temperature.
But I feel exhausted, I have such a headache, and my pain is like a 7/10, and I can feel my brain moving slow like molasses.
@MorpheusB - I had an apple with peanut butter, because the sugar in the apple (shorter acting) will bring the sugar up and the peanut butter (longer acting) will keep it steady
I've started a new Fetlife group for disabled people. It was started after it became apparent that the other group was going to allow chasers to fetishise and objectify disabled people and that the group wasn't safe for us.
Relieved to see this outcome! I was one of the thousands who submitted a passionate response to the consultation #transport#Disability@disability | ‘Transport for All, a disabled-led organisation, called it "the best possible outcome", but added that while the government was "eventually swayed, it is appalling that disabled people's concerns were dismissed for so long".’
@sarahmatthews@disability I read the article and clicked on the parliament testimony link. This part was so true: “It’s completely ludicrous to suggest that disabled people should turn up at a station, use the help point (if they can use the help point) and then wait up to an hour for a mobile team to come out to meet them.”
@disability@bookstodon I’m particularly looking forward to reading the pieces by Polly Atkin, Khairani Barokka, Jamie Hale, Hannah Hodgson, Sally Huband, Abi Palmer and Louise Kenward. it’s available online and in bookshops and also as a Kindle e-book: