tomkindlon, to disability
@tomkindlon@disabled.social avatar
halcionandon, to disabilityjustice
@halcionandon@disabled.social avatar

please

GPs in clinics are waiting for me to:

  1. Go into (I’m not aged.)
  2. To see a (Who works in their clinic.)
  3. Because I don’t fit their business model. (They won’t or me even if I see them once.)

Yes they literally said this.

Someone help me! 😭

@mecfs
@chronicpain @chronicillness
@disabilityjustice



tomkindlon, to disability
@tomkindlon@disabled.social avatar

"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"

https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html

@mecfs






@chronicillness
@spoonies
@disability

tomkindlon, to disability
@tomkindlon@disabled.social avatar
halcionandon, to disability
@halcionandon@disabled.social avatar
tomkindlon, to disability
@tomkindlon@disabled.social avatar

Ep 148

Let's talk dynamic disability.

Vlad Vexler:
From: https://twitter.com/vladvexler/status/1453428887548047367

If people know of any of Vlad's other social media channels where he talks about ME, etc., please let me know.

I know he has a very popular YouTube channel on Russian politics but that's not particularly relevant for those who might be interested in this video.

@mecfs @longcovid @chronicillness
@spoonies
@disability

video/mp4

tomkindlon, to random
@tomkindlon@disabled.social avatar

"Chronic fatigue syndromes: real illnesses that people can recover from"

Some wishful thinking from the biopsychosocial school

Free fulltext:
https://www.tandfonline.com/doi/epdf/10.1080/02813432.2023.2235609

What was supposed to be the definitive trial, the £5M #PACEtrial, found no increased recovery rates with CBT or GET using the protocol recovery criteria:
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

tomkindlon, to disability
@tomkindlon@disabled.social avatar
tomkindlon, to disability
@tomkindlon@disabled.social avatar
tomkindlon, to disability
@tomkindlon@disabled.social avatar

It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for disability payments in lots of countries

This document is from the US but the questions could give ideas about areas people in other countries could write about when writing such a report

https://www.ssa.gov/forms/ssa-3380.pdf

#chronicillness @chronicillness #Spoonies @spoonies #Disabled @disability @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid
1/

halcionandon, to disability
@halcionandon@aus.social avatar

Please help me find a #GP or any #doctor willing to prescribe #fentanyl patches ( or dose equivalent) within the next 13 days in #Melbourne #Australia

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or #withdrawal agony for me & no #pain control.

Time running out fast!😫

#Boosts appreciated!

#ChronicPain
@chronicpain
@mecfs #MedMastodon
#PwME #PwLC
@longcovid
@chronicillness
@spoonies
@disability
#SaveMyArse

halcionandon, to disability
@halcionandon@aus.social avatar

Please help me find a #GP or any #doctor willing to prescribe #fentanyl patches ( or dose equivalent) within the next 13 days in #Melbourne #Australia

Refused meds by GP who promised to prescribe until I found a new GP (he dropped me because my case is too complex). Changed his mind! Now have 13 days to find any doctor to write a script or #withdrawal agony for me & no #pain control.

Time running out fast!😫

#ChronicPain
@chronicpain
@mecfs #MedMastodon
#PwME #PwLC
@LongCovid
@chronicillness
@spoonies
@disability
#SaveMyArse

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