Moody_Octopus, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid
Depression, Social Anxiety Disorder, Autism

Grizzlysgrowls, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid

One of the reasons I walk with a cane I don't -always- need. It's like one a them parking thingies you hang on your rearview, if you don't have a car.

kitoconnell, 6 months ago

@Grizzlysgrowls @tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid yes I also use a cane partly to signal my disability. With all respect to disabled folks of all kind, I would actually say most disabilities probably look like the last photo.

susannelilith, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid

Was man nicht sieht, wird einem selten geglaubt. Und herunter gespielt. Kann ja nicht so schlimm sein.

Doch, ist es.

PeteZ, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid

And #crohnsdisease

kimlockhartga, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid I used to be on the BYDLS (But You Don't Look Sick) message boards. A sister member reminded me that I'd re-written the lyrics to "Santa Baby" for spoonies:

From: ButYouDontLookSick.com

Santa baby, would you put up the tree, For me?

I've been chronically ill,
Santa baby, so won't you do this for me tonight?

Santa baby, if you'll decorate too, please do.

I'll wait up for you dear,
Santa baby, just to thank you for your effort tonight.

Think of all the fun I've missed,
Think of all the doctors that I haven't dissed,
Next year I could be oh, so sweet,
If you make my list complete,
Boo doo bee doo. [background]

Santa honey, I need some more rest,
And that's not a lot to request,
I've had a long battle with fear,
Santa baby, won't you do this for me this year?

Santa cutie, there's one other thing that I need, Relief.
From these pains everywhere,
Santa cutie, make them disappear tonight.

Santa baby, fill my stocking with drugs, And checks.
Make the copays go away, today,
Santa baby, and pay my doctors' bills tonight.

Come and trim my Christmas tree,
You know that I don't have the energy,
I really do believe that you,
Can make all of these dreams come true,
Boo doo bee doo. [background]

Santa baby, forgot to mention BYDLS, oh yes.
I don't want to leave out my friends,
Santa baby, help everyone on the site, tonight,
Help all of us spoonies tonight,
Help all of us spoonies tonight!

Krosen_nw, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid
All day everyday, but no outward symptoms
#Fibromyalgia #ChronicPain

tofugolem, 6 months ago

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid
Some have no visible signs.

Some conditions allow people to be completely normal some of the time, and racked with pain at other times.