tomkindlon, 6 months ago to disability

On #internationaldayofdisabledpersons, please remember that not all disabilities are visible.

#IDPWD2023 #InternationalDayOfPersonsWithDisabilities #IDPWD #IDDP2023 @chronicillness
@spoonies
@disability
#Disabled
#Disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC

tomkindlon, 6 months ago to disability

"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"

https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #chronicillness
#chroniclife #Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
@chronicillness
@spoonies
@disability
#Disabled #Disability #DisabilityArt

tomkindlon, 7 months ago to disability

"How to Be a Friend to a Friend Who's Sick"

I saw this book being recommended by somebody who cares for someone with ME.

I don't know anything more about it.

https://www.hachettebookgroup.com/titles/letty-cottin-pogrebin/how-to-be-a-friend-to-a-friend-whos-sick/9781610392846/?lens=publicaffairs

#Illness #chronicillness #hiddenillness #invisibleillness #Spoonies #Spoonie #ChronicallyIll @fibromyalgia @chronicillness
@spoonies
@disability
@longcovid
#LongCovid @mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

tomkindlon, 9 months ago to random

"Chronic fatigue syndromes: real illnesses that people can recover from"

Some wishful thinking from the biopsychosocial school

Free fulltext:
https://www.tandfonline.com/doi/epdf/10.1080/02813432.2023.2235609

What was supposed to be the definitive trial, the £5M #PACEtrial, found no increased recovery rates with CBT or GET using the protocol recovery criteria:
https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE

tomkindlon, 9 months ago to disability

"Energy-Saving Self Care Cards" from Ricky Buchanan

https://www.energysavingselfcare.com/

The cards are not free but she does post some examples on the associated social media pages
e.g. https://www.facebook.com/energysavingselfcare/

#chronicillness #chroniclife #Spoonielife
#Spoonies #Spoonie #LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @chronicillness
@spoonies
@disability
@longcovid

tomkindlon, 9 months ago to disability

(US) "Discrimination on the Basis of Disability in Health and Human Programs or Activities"

https://www.federalregister.gov/documents/2023/09/14/2023-19149/discrimination-on-the-basis-of-disability-in-health-and-human-service-programs-or-activities

https://www.govinfo.gov/content/pkg/FR-2023-09-14/pdf/2023-19149.pdf

"an OCR investigation revealed a State denied a
prospective parent with #ChronicFatigueSyndrome & other disabilities the opportunity to become a foster parent"

@mecfs
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME @chronicillness
@spoonies
@disability
#chronicillness
#chroniclife
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie