@maggiejk@zeroes.ca
@maggiejk@zeroes.ca avatar

maggiejk

@[email protected]

Animal lover, anti-fascist, beach goer.Marijuana is Medicine. #BLM, #M4A, #ANTIFA #Childfree by choice. #CovidZERO 🌹#MECFS #atheist
VERY ANTI-PATRIARCHY
Rooting for the Orcas

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poloniousmonk, to actuallyautistic
@poloniousmonk@mastodon.social avatar

@actuallyautistic

Does anyone else drink a lot? Not booze, just fluids. For someone who barely feels hunger or discomfort, I'm always drinking and pissing. I've always assumed it was something medical and undiagnosed, but maybe it's an autist thing. Thoughts?

maggiejk,
@maggiejk@zeroes.ca avatar

@poloniousmonk @actuallyautistic I have ADHD and I cannot deal with life if I don’t have a bottle of water (refilled glass not plastic filled with water purchased at the store) on me at all times.

I sought medical attention a few years ago when I realized I couldn’t work out in the morning because I had to stop to pee like six times every hour. I was totally freaked out when my doctor told me that urinating every two hours is normal. I go so many more times than that.

For me, I eventually determined that it was my ADHD medication. It’s not a side effect from the medication I think what is happening is that the additional dopamine in my body is stimulating my kidneys, so in addition to the water that I sip off of all day long, I think that’s the problem. I even tested it by skipping medication and noting that once the morning coffee drinking is over I don’t have the urgency and frequency that I do when I take Adderall.

It’s really annoying because the days I take my medication are the days that I have to do some thing that requires focus and attention, or enough energy to drive my car for a couple hours, and those are exactly the times I don’t want to stop to use the bathroom every 15 minutes.

There’s a medication that they give to old people in nursing homes, it starts with an H. It REALLY works, but it made my bladder HURT so badly I can’t even take a half dose. (Hyoscyamine I think) but, if I remember correctly, that doesn’t solve the constantly drinking issue. But I’m not really looking to solve that problem. I actually like that I drink water all day long. I just wish it didn’t rush out of me like it does.

FML

18+ maggiejk,
@maggiejk@zeroes.ca avatar

@holyramenempire @poloniousmonk @actuallyautistic oh good call mentioning Diabetes. When my little brother developed type one the first symptoms were excessive thirst and sugar craving. That little boy wanted Reese‘s peanut butter cups on a level I have never seen in my life. Those things are delicious so it made sense for a minute. Luckily my mom recognized the symptoms pretty early because she had an older brother with type one.

halcionandon, to disabilityjustice
@halcionandon@disabled.social avatar

please

GPs in clinics are waiting for me to:

  1. Go into (I’m not aged.)
  2. To see a (Who works in their clinic.)
  3. Because I don’t fit their business model. (They won’t or me even if I see them once.)

Yes they literally said this.

Someone help me! 😭

@mecfs
@chronicpain @chronicillness
@disabilityjustice



maggiejk,
@maggiejk@zeroes.ca avatar

@halcionandon @disabilityjustice I am in the US and my pain management provider usually only makes me go in every other month I just called for a refill on the off months.

Last month I asked if I could increase my dose by 5 mg a day because I’m just not getting enough coverage with the amount of insomnia that I experience. She agreed but only if I would come in next month rather than call in. I laughed and I was like yeah I can come in whenever I’m like 15 minutes down the road. But I am well aware that they are just trying to get as much revenue as they can before the end of the year. And I’m not objecting because I really do need the extra 5 mg. But it feels gross that it was presented that way.

And man, just having that extra 5 mg if I need it made such a difference, I have noticed that about half the days I don’t even take it because I don’t need it. But knowing I have it if I caused myself extra pain makes it easier for me to do what I need to do because I don’t have to worry that I will be an extra pain later because I can do something about it if I am.

Of course I still have to pace because of the but at least I know I don’t have to put myself to bed at 6 PM on a heating pad because the pain is just overwhelming.

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