On my way to the #ScrapTheGreenPaper (on #disabilityreform) protest outside Leinster House (which houses the Irish parliament). These proposals if implemented would make life a lot more difficult for many with #disabilities and disabling illnesses. 😡
"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"
I'm considering going to this protest, "“Scrap The Green Paper” coalition calls on the Department of Social Protection to "Scrap the Green Paper" on Disability Reforms." outside Leinster House on Thur, Dec 7.
Doctor appt today, and he happily wrote up all the pain relief I needed prescribed for my shoulder.
I thought it might be difficult to get him to prescribe endone, panadeine forte, mobic, panadol osteo, and palexia.. but we went over how I was taking them all and he agreed that I was fine with how I was approaching it - and that taking such a variety of things meant actually taking less opioid based meds because I was able to keep on top of the pain with things like panadol osteo.
We also did my mental health plan and I hit a 40 on the K10.. which is Very Fucking High. We talked about that, and about how therapy is helping and that a big part of the 40 score is probably actually pain related as well.
He agreed that I showed great insight into my illness and that I was comfortable with being vulnerable enough to ask for help, so I get to skip hospitalisation (fucking yay!) because I have a good support system and I know how to access acute assistance if needed.
But still, 40 was even higher than I was expecting tbh. I'm usually around a 25-27.
I woke up having a hypo this morning and I don't know if I still feel gross after that, if I'm getting sick, if it's a fibro flare, or if my body is just overreacting to the sudden change in temperature.
But I feel exhausted, I have such a headache, and my pain is like a 7/10, and I can feel my brain moving slow like molasses.
I've started a new Fetlife group for disabled people. It was started after it became apparent that the other group was going to allow chasers to fetishise and objectify disabled people and that the group wasn't safe for us.
I have a silent migraine at the moment, and it's so weird.
I have all my usual migraine symptoms - blurred vision, black floaties, dizziness, my eyes are streaming with tears, blocked sinuses etc.. but no pain at all.
It's so strange. I mean, I'm not complaining. If I can switch out all my migraines for this I'll be a happy muffin. But, it's weird!
Disability At Home:
"This website documents the ingenuity and creativity that caregivers and disabled people, including those with chronic illnesses, use every day to make home accessible..."
"My doctor signed it without question. I still was not comfortable with the term “disabled” then and I was still trying to pretend I could physically do what I was longer able to do. “Passing” as able-bodied was significantly easier than trying to live with disability (or so I thought at the time), and I was coasting on denial as long as I could."
"But I was wrong. I was and am disabled. I got the [parking] placard and ended up using it every day because it was a life saver. I wished I had gotten it sooner when I needed it, long before I finally talked to my doctor about it."
"4. If someone would like to help those with #disabilities, there are better ways to do this than by leaving notes on someone’s car or making disdainful comments... You can spread the word that many disabilities are invisible and learn more about why disability and illness are often considered “invisible.”..."
"Those with #disabilities face hurdles every day the able-bodied cannot fathom. If you are concerned that the #disabled are getting a “privilege” that is somehow “undeserved,” you are entitled to your opinion but please don’t act on it."