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aloopapu, to actuallyautistic
@aloopapu@toot.community avatar

@actuallyautistic what are the spoons I see referenced frequently.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@Adventurer @aloopapu @actuallyautistic

Also matches, dice, and even Street Fighter power bars. Each is slightly different and may give a better understanding to different folks or in different situations. (Post below is mine)

https://ideatrash.net/2018/09/forget-spoons-and-matches-use-dice-to-communicate-chronic-illness.html

eo, to actuallyautistic
@eo@dads.cool avatar

I wonder if there is any research on children of autistic parents, both autistic and not. It would be a touchy subject to pry open, from several perspectives on ethics. But I am both an autistic father and a son of an autistic father, so… I've been wondering.
@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

Full Text available:

Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media

https://journals.library.brocku.ca/index.php/SSJ/article/view/2701

Paywalled (though the abstract gets the point across):

Autistic Parents’ Personal Experiences of Parenting and Support: Messages from an Online Focus Group

https://academic.oup.com/bjsw/article-abstract/53/1/276/6651130

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

You've got to look at any of it VERY skeptically, though. For example, the 2014 study below implies that PTSD in a mother is a "risk factor" for autism, but what they were probably actually measuring was undiagnosed autistic mothers who had CPTSD from being autistic (and female-presenting) in our society. As they did not even recognize that possibility in the study, it's impossible to tell for sure.

https://linkinghub.elsevier.com/retrieve/pii/S1750946714000427

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@bananamangodog @eo @actuallyautistic

I wonder how many sociologists are autists/neurospicy? Our whole deal is "seeing the strange in the familiar," so maybe in the same way that partnerships between sociologists and economists have helped to make the latter more... human ... we could do the same with medical science?

Or maybe I'm being waaaay too hopeful.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

I've found that as a quick litmus test is whether or not the tone of the study is centered on the needs of the autist or on the needs of those around the autist. (The latter includes "we must cure them" attitudes.)

There's a clip from Chris Packham in the blog post I wrote (link below) which really kind of illustrates the difference.

https://ideatrash.net/2023/05/the-casual-disregard-of-the-neurodivergent-voice.html

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

@autisticadvocacy @actuallyautistic

In this video, I explain how bad research accidentally shows how flawed the diagnostic criteria are, and gives credibility to

(featuring a toot by @Zumbador )

https://www.tiktok.com/t/ZT8MtQy69/

or

https://youtu.be/0PtR7z0xNx0?si=v0LonRdKZzD1FFov

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@ahrimans_erbe @autisticadvocacy @actuallyautistic @Zumbador

The monitropism questionnaire is the only one I know of, but I haven't done anything like a literature review.

Richard_Littler, to actuallyautistic
@Richard_Littler@mastodon.social avatar

The binge continues unabated. These are some of the CDs I listened to (a lot) in the 90s. They're almost tame compared with some of his other works, e.g., Dance Nos 1-5, Music In 12 Parts, and the operas, which some find a bit challenging. There's something about his intense, repetitive loops that suggests autistic stimming and I'd be interested to know if the music of Glass (and other minimalist composers) resonates with other autistic people.
@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@t_slider @Richard_Littler @actuallyautistic

Y'all seen musicForProgramming(); yet? May have some gems for you.

https://musicforprogramming.net/latest/

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

I am seriously wondering -- with the massive under- and mis-diagnosis of neurospicy things:

Are we really the "divergent" ones here, numerically? Or are we just not the ones who made the rules?

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@mwl @actuallyautistic

MOTHERFORKING THIS.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@LauraLangdon @actuallyautistic

Sure, just as there is nobody who is actually "average."

At the same time, the more I poke at my cognition compared to that of others, the more I realize that there at least a sub-set of allistics who not only have different logical "givens" about how they think, but ultimately cognate in a way that is radically different from mine in a way that is almost painful to emulate.

feditips, to RSS
@feditips@mstdn.social avatar

Today, a very niche tip for RSS fans :rss:

As well as Mastodon's built-in hashtag following system, you can also follow hashtags through RSS instead:

  1. Search for a hashtag on a Mastodon server's website
  2. Add .rss to the end of the URL
  3. Use this URL as the feed address for that tag

For example to subscribe to on mstdn.social you would use this address in your feed reader:

https://mstdn.social/tags/dogs.rss

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@dct @feditips @thunderbird @Inoreader @samsantaella @resol

Interesting! I view it almost completely oppositely (the RSS feeds I read are separate from social media on purpose, even though I often use RSS to glue things together); I'm glad there's options.

grammaticus, to actuallyautistic
@grammaticus@nerdculture.de avatar

Five hours of sleep... 😴 Not bad, in the end, I guess. Just to share what finally helped me to fall asleep - a white noise stream on my radio app. 📻

I've heard of it before - people using white noise machines and such, but I've never tried it before. I guess I can put this on my list of life hacks that actually work ☑️

@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@grammaticus @actuallyautistic @ChrisT

I actually made long audio of "pink noise" when I started third shift. I put the files (MP3, M4A, OGG) up if anyone would like them.

GDRIVE LINK: https://stevensaus.com/s/pinknoise

Internet Archive mirror: https://stevensaus.com/s/pinknoise2

Post where I talk about pink noise, creating the files, etc:

https://ideatrash.net/2023/03/get-better-sleep-with-a-sleep-mask-and-pink-noise-free-downloads.html

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

This... this hit, and Occam (along with what I know of sociology and economics and such) all track wit h this insight as well.

@autisticadvocacy

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@topaz @CookieCat @autisticadvocacy

That has always tended to be my experience among everyone except neurospicy folks. It's not a universal among us, either, but it's a far better success rate.

Nobody's forcing nothing, though.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@stonebear @autisticadvocacy @Zumbador

There's a good part of me that wonders if there's a correlation between a wider range gender expression (and relationship diversity, perhaps) and the neurospicy tendency to look at conventions that have no reasoning behind them and then ignore the (stupid) conventions and just do what makes sense/ feels "correct" to us.

I am a cishet dude, so I may be VERY VERY off-base here. Thoughts?

PsychTink, to autisticadvocacy

Would quote more, but word limit.
gives us access to everything but oppression. That’s the only thing we can’t colonize. So, what do we do? We turn into social currency.” They comment on the obsession w/ “uniqueness” the internet has; white people get “extra points” for belonging to identities that are like queer, trans, . A lot of white folks are blind to their white "
@audhd @socialwork @autisticadvocacy
https://www.autostraddle.com/autism-is-not-a-trend-but-there-are-problems-with-how-its-discussed-online/

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@PsychTink @audhd @socialwork @autisticadvocacy

The concern here seems similar to the (very very very real) "white women's tears" effect documented in 2nd and 3rd wave feminism, correct?

Not discrediting it at ALL; it's something I'm quite worried about accidentally doing.

hosford42, to actuallyautistic
@hosford42@techhub.social avatar

I'm . The sound of the train blowing its horn as it passes my house makes me cover my ears in pain. But the throbbing bass of the engine that causes a deep pressure in my chest from the vibration makes me feel happy.

When I was a kid, I used to crank up the bass of my parents' stereo and sit directly against the woofer to feel that pressure. They would always yell at me to turn it down. I've always loved that feeling.


@actuallyautistic
@neurodiversity

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@hosford42 @Tooden @actuallyautistic @neurodiversity

TFMW you learn that yet another thing you thought everyone experienced isn't...

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