@StevenSaus@faithcollapsing.com
@StevenSaus@faithcollapsing.com avatar

StevenSaus

@[email protected]

There are people I love.There are people who love me. I fight for what I believe, protect those I could, and stand my ground against the encroaching darkness.

I often (but not only) post things I've found around the web that I think are neat.

My statements and posts here do not necessarily represent those of any organization or business I am part of, nor should they be taken as if they do.

Neurospicy elder polyamorous weirdo.

This profile is from a federated server and may be incomplete. Browse more on the original instance.

aloopapu, to actuallyautistic
@aloopapu@toot.community avatar

@actuallyautistic what are the spoons I see referenced frequently.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@Adventurer @aloopapu @actuallyautistic

Also matches, dice, and even Street Fighter power bars. Each is slightly different and may give a better understanding to different folks or in different situations. (Post below is mine)

https://ideatrash.net/2018/09/forget-spoons-and-matches-use-dice-to-communicate-chronic-illness.html

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

Because I'd forgotten: If you're using Linux and PulseAudio, you can use your laptop to pipe "outside" sounds through your headphones while you're listening to music, and control the volume of it to reduce stimuli while not shutting it all out.

Literally doing that right now in the ER waiting room, and it's saving my sanity.

https://ideatrash.net/2011/04/monitor-your-environment-in-ubuntu-wi.html

@actuallyautistic @actuallyaudhd

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

If you have not yet read Fern Brady's memoir "Strong Female Character," do so. it will be a hard emotional read -- Fern shares her experiences as an #autistic woman -- but it's also good and honest and no bullshit from a very very smart comedian. Cannot recommend enough.

@actuallyautistic @actuallyaudhd

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

How do you tell the difference between reactions you have because you're neurospicy and the reactions you have from past trauma? (Let alone where they overlap!)

(I'm talking more behavioral than sensory here, things akin to rejection sensitivity, etc)

@actuallyautistic @actuallyaudhd

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

This is particularly relevant to neurospicy folx. Just "do it harder" is useless advice to us. We have to give ourselves grace and then control our environment. But first we have to stop blaming ourselves.

You are doing the best you can right now, with your situation the way it is.

-

https://www.youtube.com/watch?v=QIcdh72F3U4

@actuallyautistic @actuallyaudhd

18+ StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

Double imposter syndrome among late-realized and late-diagnosed and folx.

Yes, it's the clocksite. This one hit me HARD, and worth watching.

https://www.tiktok.com/t/ZT8kSr69c/

@actuallyautistic @actuallyaudhd

18+ StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyaudhd
@actuallyautistic

I wrote this about my experiences; I am hoping that this resonates and/or broadens the discussion.

Autistic masking is one of those things that regularly gets misunderstood. People will accuse autistic people of "pretending" or some other verb with a wide range of negative connotations.

That misunderstanding goes away when people learn more about what masking really is… but I think there’s an aspect that often gets overlooked.

https://ideatrash.net/2023/10/the-extra-effort-hiding-inside-the-autistic-mask.html

eo, to actuallyautistic
@eo@dads.cool avatar

I wonder if there is any research on children of autistic parents, both autistic and not. It would be a touchy subject to pry open, from several perspectives on ethics. But I am both an autistic father and a son of an autistic father, so… I've been wondering.
@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

Full Text available:

Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media

https://journals.library.brocku.ca/index.php/SSJ/article/view/2701

Paywalled (though the abstract gets the point across):

Autistic Parents’ Personal Experiences of Parenting and Support: Messages from an Online Focus Group

https://academic.oup.com/bjsw/article-abstract/53/1/276/6651130

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

You've got to look at any of it VERY skeptically, though. For example, the 2014 study below implies that PTSD in a mother is a "risk factor" for autism, but what they were probably actually measuring was undiagnosed autistic mothers who had CPTSD from being autistic (and female-presenting) in our society. As they did not even recognize that possibility in the study, it's impossible to tell for sure.

https://linkinghub.elsevier.com/retrieve/pii/S1750946714000427

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@bananamangodog @eo @actuallyautistic

I wonder how many sociologists are autists/neurospicy? Our whole deal is "seeing the strange in the familiar," so maybe in the same way that partnerships between sociologists and economists have helped to make the latter more... human ... we could do the same with medical science?

Or maybe I'm being waaaay too hopeful.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

I've found that as a quick litmus test is whether or not the tone of the study is centered on the needs of the autist or on the needs of those around the autist. (The latter includes "we must cure them" attitudes.)

There's a clip from Chris Packham in the blog post I wrote (link below) which really kind of illustrates the difference.

https://ideatrash.net/2023/05/the-casual-disregard-of-the-neurodivergent-voice.html

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

Well, it's definitely strange being consciously aware that one's sensory perceptions are going out of whack in real time.

(Perceived volume at the moment)

@actuallyautistic

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

Anybody else now having a hard time NOT seeing a WHOLE LOT of media as allegories for "neurodivergent person/people forced to interact with allistic society" after realizing you were neurodivergent?

Currently rewatching "The Girl With All The Gifts," for context. (If you've not seen the film, I highly recommend it if you're into horror at all.) But that's not the only one, by far.

@actuallyaudhd @actuallyautistic

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

@autisticadvocacy @actuallyautistic

In this video, I explain how bad research accidentally shows how flawed the diagnostic criteria are, and gives credibility to

(featuring a toot by @Zumbador )

https://www.tiktok.com/t/ZT8MtQy69/

or

https://youtu.be/0PtR7z0xNx0?si=v0LonRdKZzD1FFov

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@ahrimans_erbe @autisticadvocacy @actuallyautistic @Zumbador

The monitropism questionnaire is the only one I know of, but I haven't done anything like a literature review.

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

@autisticadvocacy

"Autism Diagnosis at Toddler Age May Not Persist to Elementary School Years"

Thought 1: So the kids learn to mask?

Thought 2: Maybe your diagnostic criteria are screwy?

Thought 3: Way to define autists through how much they inconvenience allistics.

They used the Vineland Adaptive Behavior Scale, which is described elsewhere as, "the leading instrument for supporting the diagnosis of intellectual and developmental disabilities."

https://www.hcplive.com/view/autism-diagnosis-toddler-age-may-not-persist-elementary-school-years

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

Four Different Autism Subtypes Identified by Brain Activity (from April 2023)

Using a combination of machine learning and neuroimaging data, researchers report people on the autism spectrum can be classified into four different subtype groups based on brain activity and behavior.

https://neurosciencenews.com/asd-subtypes-machine-learning-22968/

@actuallyautistic

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

@autisticadvocacy
@actuallyautistic

Accommodation Or Abuse: The False Choice Managers Have With Employees

Do you want to be a leader or manager who actually works with your neurodivergent employees, or do you want to create a hostile, toxic, and inefficient work environment because of the fragility of your ego?

https://ideatrash.net/2023/09/accommodation-or-abuse-the-false-choice-managers-have-with-neurospicy-employees.html

Richard_Littler, to actuallyautistic
@Richard_Littler@mastodon.social avatar

The binge continues unabated. These are some of the CDs I listened to (a lot) in the 90s. They're almost tame compared with some of his other works, e.g., Dance Nos 1-5, Music In 12 Parts, and the operas, which some find a bit challenging. There's something about his intense, repetitive loops that suggests autistic stimming and I'd be interested to know if the music of Glass (and other minimalist composers) resonates with other autistic people.
@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@t_slider @Richard_Littler @actuallyautistic

Y'all seen musicForProgramming(); yet? May have some gems for you.

https://musicforprogramming.net/latest/

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

It seems like the movie industry really wants to keep neurodivergence and autism front and center for me... but without actually naming it.

Spoilers at the blog for Asteroid City, No Hard Feelings, and Corner Office.

https://ideatrash.net/2023/08/neurospicy-movie-triple-feature-asteroid-city-no-hard-feelings-and-corner-office.html

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

In episode billion or so of "Oh, look, someone describes an trait with a word for word conversation I've had."

https://www.tiktok.com/t/ZT8YAWFxv/

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

I am seriously wondering -- with the massive under- and mis-diagnosis of neurospicy things:

Are we really the "divergent" ones here, numerically? Or are we just not the ones who made the rules?

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@mwl @actuallyautistic

MOTHERFORKING THIS.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@LauraLangdon @actuallyautistic

Sure, just as there is nobody who is actually "average."

At the same time, the more I poke at my cognition compared to that of others, the more I realize that there at least a sub-set of allistics who not only have different logical "givens" about how they think, but ultimately cognate in a way that is radically different from mine in a way that is almost painful to emulate.

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

It appears the same technique used to identify and be more in touch with one's stress levels translate quite well to sensory overload as well. Interesting!

@actuallyautistic

feditips, to RSS
@feditips@mstdn.social avatar

Today, a very niche tip for RSS fans :rss:

As well as Mastodon's built-in hashtag following system, you can also follow hashtags through RSS instead:

  1. Search for a hashtag on a Mastodon server's website
  2. Add .rss to the end of the URL
  3. Use this URL as the feed address for that tag

For example to subscribe to on mstdn.social you would use this address in your feed reader:

https://mstdn.social/tags/dogs.rss

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@dct @feditips @thunderbird @Inoreader @samsantaella @resol

Interesting! I view it almost completely oppositely (the RSS feeds I read are separate from social media on purpose, even though I often use RSS to glue things together); I'm glad there's options.

grammaticus, to actuallyautistic
@grammaticus@nerdculture.de avatar

Five hours of sleep... 😴 Not bad, in the end, I guess. Just to share what finally helped me to fall asleep - a white noise stream on my radio app. 📻

I've heard of it before - people using white noise machines and such, but I've never tried it before. I guess I can put this on my list of life hacks that actually work ☑️

@actuallyautistic

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@grammaticus @actuallyautistic @ChrisT

I actually made long audio of "pink noise" when I started third shift. I put the files (MP3, M4A, OGG) up if anyone would like them.

GDRIVE LINK: https://stevensaus.com/s/pinknoise

Internet Archive mirror: https://stevensaus.com/s/pinknoise2

Post where I talk about pink noise, creating the files, etc:

https://ideatrash.net/2023/03/get-better-sleep-with-a-sleep-mask-and-pink-noise-free-downloads.html

PsychTink, to autisticadvocacy

Would quote more, but word limit.
“ gives us access to everything but oppression. That’s the only thing we can’t colonize. So, what do we do? We turn into social currency.” They comment on the obsession w/ “uniqueness” the internet has; white people get “extra points” for belonging to identities that are like queer, trans, . A lot of white folks are blind to their white "
@audhd @socialwork @autisticadvocacy
https://www.autostraddle.com/autism-is-not-a-trend-but-there-are-problems-with-how-its-discussed-online/

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@PsychTink @audhd @socialwork @autisticadvocacy

The concern here seems similar to the (very very very real) "white women's tears" effect documented in 2nd and 3rd wave feminism, correct?

Not discrediting it at ALL; it's something I'm quite worried about accidentally doing.

StevenSaus, to autisticadvocacy
@StevenSaus@faithcollapsing.com avatar

This... this hit, and Occam (along with what I know of sociology and economics and such) all track wit h this insight as well.

@autisticadvocacy

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@topaz @CookieCat @autisticadvocacy

That has always tended to be my experience among everyone except neurospicy folks. It's not a universal among us, either, but it's a far better success rate.

Nobody's forcing nothing, though.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@stonebear @autisticadvocacy @Zumbador

There's a good part of me that wonders if there's a correlation between a wider range gender expression (and relationship diversity, perhaps) and the neurospicy tendency to look at conventions that have no reasoning behind them and then ignore the (stupid) conventions and just do what makes sense/ feels "correct" to us.

I am a cishet dude, so I may be VERY VERY off-base here. Thoughts?

hosford42, to actuallyautistic
@hosford42@techhub.social avatar

I'm . The sound of the train blowing its horn as it passes my house makes me cover my ears in pain. But the throbbing bass of the engine that causes a deep pressure in my chest from the vibration makes me feel happy.

When I was a kid, I used to crank up the bass of my parents' stereo and sit directly against the woofer to feel that pressure. They would always yell at me to turn it down. I've always loved that feeling.


@actuallyautistic
@neurodiversity

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@hosford42 @Tooden @actuallyautistic @neurodiversity

TFMW you learn that yet another thing you thought everyone experienced isn't...

Private
StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

I couldn't feel other pain in my body (I have a current shoulder injury). I could NOT let go of the thought pattern I was having. I caught myself rocking (something I almost never do). Anything that wasn't right was WRONG WRONG WRONG. I have felt completely exhausted mentally since.

If it was a meltdown (as I'm becoming more sure it was as I write out how i felt) then that means I've got to be a LOT more careful about environmental factors than I thought.

Private
StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@herhandsmyhands @romancelandia

He's apparently taken it down now, as of an hour-old Medium post.

https://blog.shaxpir.com/taking-down-prosecraft-io-37e189797121

StevenSaus, to actuallyautistic
@StevenSaus@faithcollapsing.com avatar

@actuallyautistic

Is there an version of something like the RAADS-R?

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