eo,
@eo@dads.cool avatar

I wonder if there is any research on children of autistic parents, both autistic and not. It would be a touchy subject to pry open, from several perspectives on ethics. But I am both an autistic father and a son of an autistic father, so… I've been wondering.
@actuallyautistic

bananamangodog,
@bananamangodog@aus.social avatar

@eo @actuallyautistic from the research I have conducted over the past few months since working out I am autistic I think it's a little early for this research to occur. However the advances in autistic/neurodivergent discourse and voices of actually autistic people over the past few years I expect this research won't be far off. I believe it could actually occur now, but I wouldn't have said the same thing even 3 years ago.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@bananamangodog @eo @actuallyautistic

I wonder how many sociologists are autists/neurospicy? Our whole deal is "seeing the strange in the familiar," so maybe in the same way that partnerships between sociologists and economists have helped to make the latter more... human ... we could do the same with medical science?

Or maybe I'm being waaaay too hopeful.

bananamangodog,
@bananamangodog@aus.social avatar

@StevenSaus @eo @actuallyautistic I suspect the question should be how many autistic/neurospicy sociologists are given the freedom to investigate the phenomenon (as opposed to being confined to investigating what neurotypical people demand). I do however agree with your vision for medical science; I myself was in a medical related field and fought that fight until I couldn't any longer, but received very little support from my peers. I would REALLY like to be given the freedom to stack a public health department with autistic staff to see what would happen. I think it would be beautiful.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

You've got to look at any of it VERY skeptically, though. For example, the 2014 study below implies that PTSD in a mother is a "risk factor" for autism, but what they were probably actually measuring was undiagnosed autistic mothers who had CPTSD from being autistic (and female-presenting) in our society. As they did not even recognize that possibility in the study, it's impossible to tell for sure.

https://linkinghub.elsevier.com/retrieve/pii/S1750946714000427

eo,
@eo@dads.cool avatar

@StevenSaus @actuallyautistic I am extraordinarily skeptical of basically everything to do with autism. Being diagnosed last year, it has been like I have been cold and naked my whole life, and now I have a jacket that doesn't fit. Attempting to tell anyone about myself has gone from impossible to "just" a very long story that a very patient friend might listen to. Next DSM, it'll all change. I do believe they're learning.

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

I've found that as a quick litmus test is whether or not the tone of the study is centered on the needs of the autist or on the needs of those around the autist. (The latter includes "we must cure them" attitudes.)

There's a clip from Chris Packham in the blog post I wrote (link below) which really kind of illustrates the difference.

https://ideatrash.net/2023/05/the-casual-disregard-of-the-neurodivergent-voice.html

StevenSaus,
@StevenSaus@faithcollapsing.com avatar

@eo @actuallyautistic

Full Text available:

Where are all the Autistic Parents? A Thematic Analysis of Autistic Parenting Discourse within the Narrative of Parenting and Autism in Online Media

https://journals.library.brocku.ca/index.php/SSJ/article/view/2701

Paywalled (though the abstract gets the point across):

Autistic Parents’ Personal Experiences of Parenting and Support: Messages from an Online Focus Group

https://academic.oup.com/bjsw/article-abstract/53/1/276/6651130

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