tomkindlon, 6 months ago to disability "Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer" https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #chronicillness #chroniclife #Spoonielife #ChronicIllnesses #Spoonies #Spoonie @chronicillness @spoonies @disability #Disabled #Disability #DisabilityArt
"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"
https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #chronicillness #chroniclife #Spoonielife #ChronicIllnesses #Spoonies #Spoonie @chronicillness @spoonies @disability #Disabled #Disability #DisabilityArt
tomkindlon, 7 months ago to disability "How to Be a Friend to a Friend Who's Sick" I saw this book being recommended by somebody who cares for someone with ME. I don't know anything more about it. https://www.hachettebookgroup.com/titles/letty-cottin-pogrebin/how-to-be-a-friend-to-a-friend-whos-sick/9781610392846/?lens=publicaffairs #Illness #chronicillness #hiddenillness #invisibleillness #Spoonies #Spoonie #ChronicallyIll @fibromyalgia @chronicillness @spoonies @disability @longcovid #LongCovid @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
"How to Be a Friend to a Friend Who's Sick"
I saw this book being recommended by somebody who cares for someone with ME.
I don't know anything more about it.
https://www.hachettebookgroup.com/titles/letty-cottin-pogrebin/how-to-be-a-friend-to-a-friend-whos-sick/9781610392846/?lens=publicaffairs
#Illness #chronicillness #hiddenillness #invisibleillness #Spoonies #Spoonie #ChronicallyIll @fibromyalgia @chronicillness @spoonies @disability @longcovid #LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
tomkindlon, 8 months ago to disability #VladsMEdiary Ep 148 Let's talk dynamic disability. #MEawarenesshour #LongCovid Vlad Vexler: From: https://twitter.com/vladvexler/status/1453428887548047367 If people know of any of Vlad's other social media channels where he talks about ME, #chronicillness etc., please let me know. I know he has a very popular YouTube channel on Russian politics but that's not particularly relevant for those who might be interested in this video. @mecfs @longcovid @chronicillness @spoonies @disability #MEcfs #CFS #PwME #MyalgicE video/mp4
#VladsMEdiary Ep 148
Let's talk dynamic disability.
#MEawarenesshour #LongCovid
Vlad Vexler: From: https://twitter.com/vladvexler/status/1453428887548047367
If people know of any of Vlad's other social media channels where he talks about ME, #chronicillness etc., please let me know.
I know he has a very popular YouTube channel on Russian politics but that's not particularly relevant for those who might be interested in this video.
@mecfs @longcovid @chronicillness @spoonies @disability #MEcfs #CFS #PwME #MyalgicE
video/mp4
tomkindlon, 9 months ago to random "Chronic fatigue syndromes: real illnesses that people can recover from" Some wishful thinking from the biopsychosocial school Free fulltext: https://www.tandfonline.com/doi/epdf/10.1080/02813432.2023.2235609 What was supposed to be the definitive trial, the £5M #PACEtrial, found no increased recovery rates with CBT or GET using the protocol recovery criteria: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3 @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
"Chronic fatigue syndromes: real illnesses that people can recover from"
Some wishful thinking from the biopsychosocial school
Free fulltext: https://www.tandfonline.com/doi/epdf/10.1080/02813432.2023.2235609
What was supposed to be the definitive trial, the £5M #PACEtrial, found no increased recovery rates with CBT or GET using the protocol recovery criteria: https://bmcpsychology.biomedcentral.com/articles/10.1186/s40359-018-0218-3