theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What’s the most important thing you’ve learnt this year about being ?

@actuallyautistic

janetlogan,
@janetlogan@mas.to avatar

@RavenLuni

I'm a firm believer in making space for marginalized people. I am a minority in many ways, except that I am white. I acknowledge that privilege, and try to use it to benefit others.


@theautisticcoach @actuallyautistic

janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

December 12th is always an emotional day for me. It's my late wife Barbara's birthday, and the wells up and spills out.

Today was absolutely just such a day. And to top it off, my roommate went off on a rant about how my depth of feeling on that topic is wrong and unhealthy. Not her words. I cleaned it up.

I had a huge meltdown as a result. Now I'm exhausted, and in pain. I'm turning in for tonight. I hope.

@actuallyautistic @spoonies

tomkindlon, to disability
@tomkindlon@disabled.social avatar

"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"

https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html

@mecfs






@chronicillness
@spoonies
@disability

tomkindlon, to disability
@tomkindlon@disabled.social avatar
janetlogan, to actuallyautistic
@janetlogan@mas.to avatar

It's been a long eventful day. I'm tired, hurting, and my brain is at overload. I took a couple of Tylenol PM tabs, so I'm soon off to 💤.

Good night, or whatever is appropriate for your location.

@spoonies @actuallyautistic

tomkindlon, to disability
@tomkindlon@disabled.social avatar

The author refers to using the spoon theory so presumably has some energy limiting chronic illness (which is unspecified)

https://www.tumblr.com/i-the-spoonie/724820869881495552

@fibromyalgia @chronicillness
@spoonies
@disability

tomkindlon, to disability
@tomkindlon@disabled.social avatar
tomkindlon, to disability
@tomkindlon@disabled.social avatar

Disability At Home:
"This website documents the ingenuity and creativity that caregivers and disabled people, including those with chronic illnesses, use every day to make home accessible..."

https://www.disabilityathome.org/

@chronicillness
@spoonies
@disability @mecfs

tomkindlon,
@tomkindlon@disabled.social avatar
tomkindlon, to disability
@tomkindlon@disabled.social avatar
tomkindlon,
@tomkindlon@disabled.social avatar

6/
"When someone leaves a note on a car or makes a comment, they are making rash judgments about someone they’ve never even met and enacting a gross injustice on someone who faces daily obstacles already.

This needs to stop."

#Butyoudontlooksick #Invisibledisability #Spoonie
@chronicillness @spoonies @disability @mecfs @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

9/

"4. If someone would like to help those with #disabilities, there are better ways to do this than by leaving notes on someone’s car or making disdainful comments... You can spread the word that many disabilities are invisible and learn more about why disability and illness are often considered “invisible.”..."

#chronicillness #Spoonie #Hiddendisabilities #Invisibledisability

@chronicillness @spoonies @disability @mecfs @longcovid

tomkindlon,
@tomkindlon@disabled.social avatar

10/

"Those with face hurdles every day the able-bodied cannot fathom. If you are concerned that the are getting a “privilege” that is somehow “undeserved,” you are entitled to your opinion but please don’t act on it."


@chronicillness @spoonies @disability @mecfs @longcovid

tomkindlon, to disability
@tomkindlon@disabled.social avatar
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