"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"
I don't like folks making money off my autism. And I don't enjoy transactional social relationships... especially those masquerading as some noble purpose.
I usually just block. But I'm getting sick of it.
This morning's DM finally brought this response from me.
"Honestly I don't try freemium apps that don't outline features for trial, paid, and free versions.
"I understand the value to you of any user's trial... marketing, user data, beta testing.
"I need to understand the value to me.
"That said, it sounds like a valuable app. Wish you luck."
And removed our connection.
Have some sensitivity when marketing to disabled folks, shall we?
Btw, no answer from neurodiverse huckster. Probably busy posting hundreds of DMs to y'all.
it's that time of year where we will soon spend a lot of time indoors, and have a lot of gatherings with family and friends, so to protect them and engage safely, be sure to get vaxxed up!
check out this updated COVID19 resource. It's from a Center for Independent Living so it's made by #Disabled folks (w/ #PublicHealth background) and centers disabled people.
I've just finished "all the light we cannot see". It follows two kids, german orphan, and a blind french girl, in parallel, while their lives get derrailed by the war. Somehow they manage to be true to themselves among the mayhem. Starts slow, but picks up speed. I loved It.
"Those with #disabilities face hurdles every day the able-bodied cannot fathom. If you are concerned that the #disabled are getting a “privilege” that is somehow “undeserved,” you are entitled to your opinion but please don’t act on it."
It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for disability payments in lots of countries
This document is from the US but the questions could give ideas about areas people in other countries could write about when writing such a report
Another great list from @fivebooks I read Sanatorium by Abi Palmer when it was published as an e-book but it’s now also available on audio through Spiracle Audiobooks. And Sea Bean is already on my reading list | ‘Living with a long-term condition or #disability is difficult, says Polly Atkin, the author of Some of Us Just Fall. Those affected often feel isolated, misunderstood, or frustrated by their interactions with the medical establishment. But books about #ChronicIllness will remind you that you are not alone; here, she recommends five memoirs that offer insight into the "kingdom of the unwell." #bookstodon#disabled#reading #ChronicPain@disability@bookstodon https://fivebooks.com/best-books/chronic-illness-polly-atkin/
"When people think about #disability or #chronicillness, they tend to do so in a very black and white sort of way: Either you are completely #disabled, or you are not — this is your permanent status, and your disability (or lack thereof) will affect you the same way today as it will tomorrow.
Update to my request for non minty remineralizing toothpaste! Thank you a for your help.
After doing some research it seems I can pretty safely use kids toothpaste that's for 6+ years old. Baby toothpaste has 500ppm fluoride, while kids has the same as adults, 1450ppm. My dentist okayed this.
For anyone looking for your own use, look for kids toothpaste with 1450ppm F, and preferably no SLS (sodium laureth sulfate) which gives the foaming effect.
You can buy unflavoured toothpaste but it's hard to come buy. After researching I've found I can use 2 or 3 different supermarket products, which is so much more convenient than ordering online.
I looked into fluoride tablets, and they are not used or recommended anymore (at least in Australia).
Thank you everyone for your suggestions. Here is the original post for anyone curious. Check the comments for the suggestions I got. https://aus.social/
Dr Amy Kavanagh was one of the first blind people I found online when I became blind and I learnt a lot from her. it’s been great to see her journey to becoming a mum and here she is raising awareness in Stylist magazine so brilliantly as always! | “I still encounter surprise and shock that I’m #blind and a parent. I recently had a waitress ask with genuine confusion “is that your baby?” when I was in the middle of breastfeeding. I try to ignore these comments but find I do feel the weight of them on me, especially on those hard, exhausting days.” #PartiallySighted#disabled#Disability#motherhood@disability https://www.stylist.co.uk/people/motherhood-blind-mum-experiences/813403
@disability Requesting help understanding wheelchairs and insurance in the U.S.
I am primarily housebound due to MECFS, hEDS, and POTS. I am able to get around my home using a manual #Wheelchair without the footrests, propelling myself with my feet. I recently received a power wheelchair, paid for by my insurance, because my health conditions are energy-limiting and degenerative. 1/
@disability I’m not able to wheel myself with my arms. I require a caregiver to push my wheelchair if we leave the house. I just want a manual wheelchair that will fit in the car and can be used at appointments and to use with my feet within the house. Is self-pay the only way to do this? And is it true that I can’t get a manual #Wheelchair that’s sized to fit me even if I pay for it? Thank you for any insight. /4 #Disabled#Disability
Hello, I'm here to seek out a community of other #Disabled people and accomplices.
I'm working to build a non-profit tool to make alt text easier, and I want to connect with folks who can help guide that project toward a useful start.
I've built a proof of concept, but getting it further will take building community. I'm #Autistic, and networking does not come easy to me. Boosting this is an immense help.