tomkindlon, to disability
@tomkindlon@disabled.social avatar
kitoconnell,
@kitoconnell@kolektiva.social avatar

@Grizzlysgrowls @tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid yes I also use a cane partly to signal my disability. With all respect to disabled folks of all kind, I would actually say most disabilities probably look like the last photo.

Moody_Octopus,
@Moody_Octopus@fedisabled.social avatar

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid
Depression, Social Anxiety Disorder, Autism

tomkindlon, to disabilityjustice
@tomkindlon@disabled.social avatar

(UK)
A worrying development for many with disabilities and disabling illnesses

“Disabled people must work from home to do ‘their duty’, says UK minister

https://www.theguardian.com/uk-news/2023/nov/21/disabled-people-work-from-home-laura-trott-benefits

#disabled #chronicillness #disabilities @disability @disabilityjustice @chronicillness @spoonies @mecfs @longcovid #mecfs

aloopapu,
@aloopapu@toot.community avatar

@tomkindlon @disability @disabilityjustice @chronicillness @spoonies @mecfs @longcovid
People continue to insist productivity is the only way to measure worth. They continue to be wrong.

Roannasylver, to random
@Roannasylver@wandering.shop avatar

💜 Been here almost a year, so! post 2.0!

🌈 I'm Ro, an and of really weird, (the CHAMELEON MOON and STAKE SAUCE series) as well as (DAWNFALL, THE GREAT BATSBY).

🤘 I'm a and creator, and tend to love other weird/queer things too!

🎃 I'm also a Norse , and dig witchy stuff in general!

🌙 All books and games are on RoAnnaSylver.com, and a thread o' books will follow!

Roannasylver,
@Roannasylver@wandering.shop avatar

CHAMELEON MOON: An entirely (including polyam, and -led) cast of superheroes survive a permanently-burning city with the power of love and rock n'roll!

Now getting an enhanced-audio , which drops on ! More info on RoAnnaSylver.com!

@bookstodon @fantasy @specfic @bookstodon @bookstadon @paranormal @lgbtqbookstodon @sffbookclub

superheroine, to publichealth
@superheroine@disabled.social avatar

@publichealth

my updated booster and my shot.

day 2 and feeling alright!

it's that time of year where we will soon spend a lot of time indoors, and have a lot of gatherings with family and friends, so to protect them and engage safely, be sure to get vaxxed up!

check out this updated COVID19 resource. It's from a Center for Independent Living so it's made by folks (w/ background) and centers disabled people.

https://www.able-sc.org/covid-19/

superheroine,
@superheroine@disabled.social avatar

@publichealth

full diclosure i am one of the disabled public health professionals, but i don't think the update i worked on is live yet.

new boosters are just rolling out. and there's a bit of an issue with access atm.

tomkindlon, to disability
@tomkindlon@disabled.social avatar
SharonGibson3,
@SharonGibson3@newsie.social avatar

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid Busybodies need to stop harassing people who have a disabled placard displayed on their rearview mirror. If there is someone abusing the use of parking spaces reserved for the disabled, there are penalties in place for this, including the loss of this privilege.

tomkindlon,
@tomkindlon@disabled.social avatar

10/

"Those with face hurdles every day the able-bodied cannot fathom. If you are concerned that the are getting a “privilege” that is somehow “undeserved,” you are entitled to your opinion but please don’t act on it."


@chronicillness @spoonies @disability @mecfs @longcovid

tomkindlon, to disability
@tomkindlon@disabled.social avatar

🧵
I thought this was very good

"Riding the Roller Coaster of Fluctuating Disability"

https://themighty.com/topic/disability/roller-coaster-of-fluctuating-disability/

"When people think about or , they tend to do so in a very black and white sort of way: Either you are completely , or you are not — this is your permanent status, and your disability (or lack thereof) will affect you the same way today as it will tomorrow.

Were it only that simple"

@chronicillness @spoonies @disability @mecfs @longcovid

1/

lydiaschoch,
@lydiaschoch@mastodon.social avatar

@tomkindlon @chronicillness @spoonies @disability @mecfs @longcovid @julesbl Thank you for this. The fluctuations of a disability can be so hard.

hannah, to random
@hannah@social.alt-text.org avatar

Hello, I'm here to seek out a community of other people and accomplices.

I'm working to build a non-profit tool to make alt text easier, and I want to connect with folks who can help guide that project toward a useful start.

I've built a proof of concept, but getting it further will take building community. I'm , and networking does not come easy to me. Boosting this is an immense help.

More information at https://alt-text.org

AAT_transcribes, to academicchatter
@AAT_transcribes@mastodon.social avatar

Twitter was our main marketing channel and it collapsing plus ongoing crisis in UK academia means we’re struggling to survive.

We are proud to offer our , and fairly paid work through our business.

To help us keep doing what we do and for high-quality & for your audio and video, get a quote today: http://academicaudiotranscription.com/our-prices

@academicchatter

EmmaBirkett,
@EmmaBirkett@social.coop avatar

@AAT_transcribes @academicchatter what a fantastic service for and those in need of fair work. Bookmarked for time!

tomkindlon, to disability
@tomkindlon@disabled.social avatar

"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"

https://www.independent.co.uk/life-style/health-and-families/me-symptoms-wheelchair-dancing-b2450860.html

@mecfs






@chronicillness
@spoonies
@disability

markw, to bookstodon
@markw@mstdn.social avatar

l just came across this in my bookmarks
Nothing Without Us Too
An anthology of "more stories by authors who are disabled, d/Deaf or hard-of-hearing, Blind or visually impaired, neurodivergent, Spoonie, and/or who manage mental illness."
https://pressesrenaissancepress.ca/
@bookstodon

johnnyprofane1, to actuallyadhd
@johnnyprofane1@neurodifferent.me avatar

Dear marketers seeking LinkedIn connections...

And I don't mean the usual "I can get you 3000 followers over nite" suspects...

I mean the "sincere" ones...

I may not be your best prospect.

I have a personal thing about...

  1. New connections whose first DM asks for a favor, donation, participation in research, editing or writing help, promoting your pet project...

Or the earnest developer who requests that I test drive a product you're SURE will help disabled folks. For money.

Most especially, folks targeting , and other 's.

  1. I don't like folks making money off my autism. And I don't enjoy transactional social relationships... especially those masquerading as some noble purpose.

I usually just block. But I'm getting sick of it.

This morning's DM finally brought this response from me.

"Honestly I don't try freemium apps that don't outline features for trial, paid, and free versions.

"I understand the value to you of any user's trial... marketing, user data, beta testing.

"I need to understand the value to me.

"That said, it sounds like a valuable app. Wish you luck."

And removed our connection.

Have some sensitivity when marketing to disabled folks, shall we?

Btw, no answer from neurodiverse huckster. Probably busy posting hundreds of DMs to y'all.

.

Dude went totally narcissistic on me. I'm rude & dismissive. Like I owe him trying his product...?⁉️

No clue how to market to folks.

@actuallyautistic @actuallyadhd

tomkindlon, to disability
@tomkindlon@disabled.social avatar

The author refers to using the spoon theory so presumably has some energy limiting chronic illness (which is unspecified)

https://www.tumblr.com/i-the-spoonie/724820869881495552

@fibromyalgia @chronicillness
@spoonies
@disability

tomkindlon, to disability
@tomkindlon@disabled.social avatar

It can be useful to get people who are not doctors to write reports about how an illness or disability has affected somebody when applying for disability payments in lots of countries

This document is from the US but the questions could give ideas about areas people in other countries could write about when writing such a report

https://www.ssa.gov/forms/ssa-3380.pdf

#chronicillness @chronicillness #Spoonies @spoonies #Disabled @disability @mecfs #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC #postcovid
1/

sarahmatthews, to bookstodon
@sarahmatthews@tweesecake.social avatar

Another great list from @fivebooks I read Sanatorium by Abi Palmer when it was published as an e-book but it’s now also available on audio through Spiracle Audiobooks. And Sea Bean is already on my reading list | ‘Living with a long-term condition or is difficult, says Polly Atkin, the author of Some of Us Just Fall. Those affected often feel isolated, misunderstood, or frustrated by their interactions with the medical establishment. But books about will remind you that you are not alone; here, she recommends five memoirs that offer insight into the "kingdom of the unwell."

@disability @bookstodon
https://fivebooks.com/best-books/chronic-illness-polly-atkin/

essie_is_okay, to actuallyautistic
@essie_is_okay@aus.social avatar

Update to my request for non minty remineralizing toothpaste! Thank you a for your help.

After doing some research it seems I can pretty safely use kids toothpaste that's for 6+ years old. Baby toothpaste has 500ppm fluoride, while kids has the same as adults, 1450ppm. My dentist okayed this.

For anyone looking for your own use, look for kids toothpaste with 1450ppm F, and preferably no SLS (sodium laureth sulfate) which gives the foaming effect.

You can buy unflavoured toothpaste but it's hard to come buy. After researching I've found I can use 2 or 3 different supermarket products, which is so much more convenient than ordering online.

I looked into fluoride tablets, and they are not used or recommended anymore (at least in Australia).

Thank you everyone for your suggestions. Here is the original post for anyone curious. Check the comments for the suggestions I got. https://aus.social/

@actuallyautistic

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