December 12th is always an emotional day for me. It's my late wife Barbara's birthday, and the #grief wells up and spills out.
Today was absolutely just such a day. And to top it off, my roommate went off on a rant about how my depth of feeling on that topic is wrong and unhealthy. Not her words. I cleaned it up.
I had a huge meltdown as a result. Now I'm exhausted, and in pain. I'm turning in for tonight. I hope.
Honestly, she's a narcissist. Her way is the only way. I know why she's the hateful way that she is. Most days I can ignore it. Some days it hits hard.
@janetlogan@actuallyautistic@spoonies
imagine the whole to of us marching in to your kitchen and having a very serious word with your roomate? Does that image help? Make you cuckle a bit?
She probably fears her own feelings and vulnerability. Maybe she is most afraid of her grief. Does not know how to soften up to her emotions. Turns her self-aggression against you. No excuse to be so monstrously insensitive.
I've been chronically ill,
Santa baby, so won't you do this for me tonight?
Santa baby, if you'll decorate too, please do.
I'll wait up for you dear,
Santa baby, just to thank you for your effort tonight.
Think of all the fun I've missed,
Think of all the doctors that I haven't dissed,
Next year I could be oh, so sweet,
If you make my list complete,
Boo doo bee doo. [background]
Santa honey, I need some more rest,
And that's not a lot to request,
I've had a long battle with fear,
Santa baby, won't you do this for me this year?
Santa cutie, there's one other thing that I need, Relief.
From these pains everywhere,
Santa cutie, make them disappear tonight.
Santa baby, fill my stocking with drugs, And checks.
Make the copays go away, today,
Santa baby, and pay my doctors' bills tonight.
Come and trim my Christmas tree,
You know that I don't have the energy,
I really do believe that you,
Can make all of these dreams come true,
Boo doo bee doo. [background]
Santa baby, forgot to mention BYDLS, oh yes.
I don't want to leave out my friends,
Santa baby, help everyone on the site, tonight,
Help all of us spoonies tonight,
Help all of us spoonies tonight!
"Woman told exhaustion was just ‘A-level stress’ overcomes debilitating diagnosis: Elizabeth Hope, who was diagnosed with ME, has since overcome her adversity to become an award-winning wheelchair dancer"
I'm considering going to this protest, "“Scrap The Green Paper” coalition calls on the Department of Social Protection to "Scrap the Green Paper" on Disability Reforms." outside Leinster House on Thur, Dec 7.
2/
While not definite,I'm still hoping to go to this.
I haven't located anything red yet to wear.I think I’ll wear a blue ribbon to highlight I have ME
& also where my invisible disability lanyard around my neck (though I will either be in a wheelchair or mobility scooter).I might bring some more blue ribbons if I remember in case anyone wants one on the day.Do come up & say hi if you see me #ScrapTheGreenPaper @disability@disabilityjustice@spoonies@mecfs