youronlyone, to actuallyautistic
@youronlyone@c.im avatar

“Autism Awareness” vs “Autism Acceptance”

In a nutshell, based on what I experienced just now.

is people just being aware. Nothing else. They still don't understand .

On the other hand, is taking an effort to understand and to reach out. To work with.

One is harmful.

The other is win-win.

@autistics @actuallyautistic @autism

youronlyone, to actuallyadhd
@youronlyone@c.im avatar

One stereotype about us is we like and . I'm a “yes” and a “no”.

I do like Prime numbers and Odd numbers:

  • 17
  • 13
  • 7

17 is very special.

  • 17 is the 7th Prime
  • 1 is an odd number
  • 7 is an odd number
  • 17 is an odd number
  • 1 + 7 = 8, although an even number, it symbolises infinity and eternity, and us

13 is also special.

  • A Prime
  • An Odd
  • A Fibonacci number

And depending on whom you ask:

  • The 8th Fibonacci number
  • The 7th Fibonacci number

Ironically:

  • The anniversary of my first romantic relationship was on: 1997-07-17. It was my first love who picked that, and she had no idea what my favourite numbers are.
  • My height is 175 cm or 5'75" to 5'85" (depending on whom you ask).
  • Favourite time of the day: 07:00 and 19:00 (7pm). 19 is the 8th Prime. (There's 8 again.)

And I'm . ^_^


How about you? What two stereotypes is you and not you?

@autistics @actuallyautistic @actuallyadhd @autism

neurotraveler, to actuallyautistic
@neurotraveler@neurodifferent.me avatar


@actuallyautistic Filed under,

don't move my stuff

Expectation that my things will remain where I keep them.

Does anyone else have a tendency to get really frustrated and upset when something you keep in a certain location is moved randomly by someone else? And you look everywhere, and can't find it? And the more you look, and as you realize it's not turning up, and you just can't find it, a feeling of utter calamity and dismay, of catastrophic sense of "the universe is no longer the same" sets in.

I really can go into a highly upset state of mind. Some would no doubt call this a meltdown.

Tooden,
@Tooden@aus.social avatar

@neurotraveler I absolutely and definitely have to make sure I put things where hubs expects to find them. Since we had to move, he has become badly discombobulated, because everything is not where it was...we moved from a 3 bedroom house with a large yard, to a 16ft van with annex, in a caravan park. His tool shed is at his sister's place. A lot of stuff is in a storage unit. It is a huge adjustment, and it drives his every-thing-in-its-own-place-mind crazy. (doesn't do much for me, either).😕 sucks for 😬 @actuallyautistic

obrerx, to actuallyautistic
@obrerx@neurodifferent.me avatar

@actuallyautistic
#actuallyautistic
#Autistic
#autism
#autist
#autistics

This is written to the #autistic community, as well as to the non-autistics among us. My apologies if this offends, I'm just trying to be informative to anyone and everyone about this topic.

I'm just gonna say to everyone that the "actuallyautistic" tag initially strikes many #autistics as gatekeeping or exclusionary. This happens all the time.

There's no way for anyone to know intuitively or by inference that it is actually intended to protect and include all autistics, whether self-self-assessed, professionally assessed, and regardless of so-called "levels" of autism.

At first glance, I think most people would interpret the tag, which says the tag users are "actually" autistic, as claiming authenticity and distancing themselves from the self-diagnosed in our community.

This is why this discussion arises so often. It's confusing. I've seen this come up constantly on twitter in years past. And it comes up here on Mastodon, too.

Of course, the history is that the often abusive and misinformed parents of autistic children were aggressively and hostilely invading into online discussions (especially on Twitter) among and between autistics, disagreeing and talking over us, talking down to us, arguing over their insistence of "severity" levels of autism, telling us we weren't autistic, that we're not qualified to discuss autism, that we don't represent autism, that we're frauds, assuming all of us are just pretending to be autistic, that we don't know what it's really like to be autistic, and in various ways and forms invalidating us.

These often were full-on attacks upon our community on Twitter. Some of these "autism parents" or "autism moms" made this a daily affair, acting as if "parent activists" who are out to set the world straight with their presumably "correct" perspective on all things involving autism.

Often their views were shockingly ablest, invalidating, erasing our voices, forcing outdated and ignorant misconceptions upon us.

So the #actuallyautistic tag was created to declare autistic-initiated discussions to be just for autistics (including self-diagnosed). Allistics could ask questions by using the #AskingAutistics tag, or if they entered an #actuallyautistic discussion they were expected to be respectful of autistic viewpoints.

It's actually a good idea to describe this history often, not just for autistics, but for all the well-meaning non-autistics who want to communicate with us.

Because... to repeat, the tag comes off as gatekeeping. It sounds as if intended to gate-keep. Any reasonable person might take it that way. And it is gatekeeping in the sense of giving non-autistics a warning to respect autistic spaces and discussions. But it isn't to keep out self-identified autistics.

obrerx,
@obrerx@neurodifferent.me avatar

@actuallyautistic


To add another point about the history, for awhile on Twitter some began to use an alternate tag:

This was intended to correct the ambiguities of the tag, so that it was more clear that it wasn't about gatekeeping.

youronlyone, to actuallyautistic
@youronlyone@c.im avatar

“Autistic Masking Is A Survival Mechanism Until It’s A Threat To Survival”

“It’s the environments we move in that need to change urgently”

A good read.

https://justinel999.medium.com/people-dont-know-i-m-autistic-but-i-m-not-masking-aa84a6c7c07a

@youronlyone

@actuallyautistic @actuallyautistics @autistics

youronlyone, to actuallyautistic
@youronlyone@c.im avatar

So, this is what's happening to me:

It describes it as:
“Autistic burnout is a syndrome conceptualized as resulting from chronic life stress and a mismatch of expectations and abilities without adequate supports. It is characterized by pervasive, long-term (typically 3+ months) exhaustion, loss of function, and reduced tolerance to stimulus.” ~Raymaker et al, 2020

Typically the Autistic person in question will still have multiple demands in their life that require cognitive resources, despite having little to no resources left to give. Life goes on, as they say.

Read the rest here: https://emergentdivergence.com/2023/05/12/creating-autistic-suffering-what-is-atypical-burnout/


Hat tip to: @emergentdivergence.bsky.social from the network.

What do you think? Anyone else?

@youronlyone

@actuallyautistic @actuallyautistics @autistics

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