@olena@genomic.social avatar

olena

@[email protected]

Too ND to actually go get diagnosed Gender/sexuality - whatever For social equity and informational equality

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Susan60, to actuallyautistic
@Susan60@aus.social avatar

Thought. I have always run warm. I do feel the cold, but not as much as most people. I hate (detest?) overheated department stores. This got worse with the onset of perimenopause, & I was unable to wear jumpers for years, because I couldn’t get them off quickly enough during hot flushes, which threatened spontaneous combustion. This settled somewhat after finally going on HRT.

I’ve noticed a change since going on ADHD meds. I now wear winter pjs on a “cool” summers night, & a nightie on warmer ones & am more likely to don a jacket of an evening.

I’m wondering whether this is a consequence of the meds, & overheating is related to ADHD. #ADHD #ActuallyAutistic @actuallyautistic #Menopause #HotFlushes #WomensHealth

olena,
@olena@genomic.social avatar

@Susan60 @actuallyautistic both me and my kid have AuDHD and are overheating especially easy when moving. I usually wear one layer less than people around. I always take off a layer or two in a mall. At +5C, I leave a house wearing a thick cardigan over silky office shirt. After walking for about a kilometer, I undo the buttons. In a km more, I take it off. But not the thin gloves. My hands and feet are almost always cold. My normal body temperature is below 36C.

olena,
@olena@genomic.social avatar

@Susan60 @actuallyautistic I know that for most people it’s about the hormones, but I don’t think it’s limiting to them: I’ve been taking the pill for most of my life, but I’ve been overheating since childhood, as well as my kid (oh those terrified glances and comments from grandparents and strangers!). We’re joking that we’re just Pratchett’s trolls

olena,
@olena@genomic.social avatar

@LordCaramac @Susan60 @actuallyautistic btw, as for ‘natural’ heat: I used to live in a cold humid climate, and for me tolerate temperatures above +25 was already hard. Now I live in a dry hot sunny place, and for some reason I not just tolerate local 35+ three months a year, but actually enjoy it. Just not indoors. Indoors should be cool.

olena,
@olena@genomic.social avatar

@LordCaramac @Susan60 @actuallyautistic I actually have a hypothesis that probably ADHD temperature regulation troubles may be the direct result of issues with hypothalamus: some studies have shown the link between that brain part and ADHD, and this is precisely the zone responsible for temperature regulation among other things

RickiTarr, to random
@RickiTarr@beige.party avatar

There aren't subservient and submissive women; there are only scared women.

olena,
@olena@genomic.social avatar

@RickiTarr and most of the time you can’t even say it out loud that you’re scared. Not because you want to seem brave or something, but because those we’re so scared of don’t want to admit that they are scarying us. ‘But there’s nothing for you to be afraid of’

AutisticAdam, to actuallyautistic
@AutisticAdam@autistics.life avatar

So, your house becomes a crammed and cluttered full of stuff. All for the sake of basic survival. It's not that you're a messy person by nature, in my case it's hidden away and under my bed. Lots of stuff.

It's that you don't have the privilege of buying EXACTLY what you need when you need it.

@actuallyautistic

olena,
@olena@genomic.social avatar

@AutisticAdam @actuallyautistic I have this especially with food. My pantry is always stocked so I can not go to store for a few weeks and will still have something to eat. I also have a tendency to buy refills/replacements for household products when they are about half-full. And I always feel the need to have repair kits for everything in the house, otherwise I’m basically living expecting for it to break

olena,
@olena@genomic.social avatar

@servelan @AutisticAdam @actuallyautistic after fleeing war, changing countries and temporary housings I realized that mine fades away when I’m actually running. The more settled I am, the stronger it gets

AutisticAdam, to actuallyautistic
@AutisticAdam@autistics.life avatar

If someone in person tells me something bad has happened to them, my first response is to share a similar experience I have had, as a way to show solidarity and remind them they're not alone.

@actuallyautistic

olena,
@olena@genomic.social avatar

@AutisticAdam @actuallyautistic that’s the first instinctive response from me. It’s basically saying ‘I understand how bad this is, how awful you feel, because I have also came through it, and I can relate, so don’t worry, I don’t dismiss or question your experience, I want to support you and let you know you got understanding friend on this ground’

olena,
@olena@genomic.social avatar

@AutisticAdam @actuallyautistic and for this very reason, I prefer when people do the same for me instead of asking me of more details or how I feel. Because if they ask - it feels like interrogation, like they’re questioning it, or they are treatening it as a news story and not my personal experience because of which I need support

AutisticAdam, to actuallyautistic
@AutisticAdam@autistics.life avatar

Me: subconsciously masks my Autistic tendencies to make/keep friends

Them: i feel like you’re always holding back! You can open up to us.

Me: starts to unmask

Them: why are you acting like this? you didn’t act like this when we first met. Were you being fake???

@actuallyautistic

olena,
@olena@genomic.social avatar

@AutisticAdam @actuallyautistic them: I see you’re so shy, but you’re so clever at work, I would like to hear your thoughts on this casual topic. Me: no, you don’t. Them: it’s ok, I like you and want to be your friend, you can share with me! Me: starts honestly sharing just a tiiiiiny bit. Them: NOT LIKE THAT!!!

zenforyen, to actuallyautistic

@actuallyautistic I'm not #actuallyautistic but I got #adhd diagnosed at 29, realizing that all cliche symptoms and diagnostic surveys are very superficial crap, lacking many subtle aspects.

I wonder, are the "cliche symptoms" for autism any good? E.g. can someone be autistic even if they can "read" other people just fine, and have no noticeable "special interest" or "rigid routines"?

Am I correct thinking this "special interest" thing must be rather persistent, like years/life long?

Thanks!

olena,
@olena@genomic.social avatar

@zenforyen @ar_collins @actuallyautistic about doing things in a certain order and adhd as inverse of autism: it’s kinda funny how those may coexist. I, for example, have both an urge to discover new routs and places and a certain routine of going to work: I have to walk those miles in a certain way. If something makes me slightly change it(like cross the street not in a usual place) - it bugs me all the day after, everything feels wrong

olena,
@olena@genomic.social avatar

@ar_collins @zenforyen @actuallyautistic yeah, it’s like there are two modes: wandering and going. The first one is ‘the newer - the better’, up to the point ‘idk where I’m moving - let’s just do the fun thing and find out’. The second one is ‘there’s an optimal route to reach our destination and we initiate the autopilot’

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