Recently I had some moderately intense encounters with medical staff, but I managed to be assertive and advocate for myself with some success. I even received actually good advice from some of them. I am feeling tired but cautiously optimistic. How about you all? Did anything go well for you recently? What was some stuff that...
With Meta’s claim that Threads will “focus on kindness,” it remains unclear how accessibility aligns with the platform’s definition of inclusivity. As CEO and founder of web accessibility company UserWay, Allon Mason, stressed, social media should be accessible to everyone, including the 1 in 5 individuals living with...
I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I’ve been having severe pain in...
The weight of living with chronic illness is getting to me again. Could use some empathy from others who understand and won’t pressure me to explain what’s going on (a dozen small triggers maybe), turn it into their problems, or tell me it will get better or the worst, “Stay strong.”...
I was approved for a morphine pain pump. Went through the psych eval etc. I’m waiting to be scheduled for my trial. Has anyone had one and what’s your experience? Thanks!
Recently there was a thread in the IAAP discussion board about “dyslexia simulators,” software that is meant to simulate the experience to people who do not have dyslexia. The simulators work by taking text on a web page and randomly switching letters around....
I have a rare muscle condition, to the point where I feel like I have to be careful where I even mention it because it might make me identifiable. It's pretty lonely sometimes because of the subset of people who have this condition, most of them don't make it to adulthood and I really don't have anybody to discuss shared...
"Our study finds that 67% of individuals with Long COVID are developing dysautonomia. That’s an estimated 38 million Americans with Long COVID dysautonomia, and millions more around the world,” says Lauren Stiles, President of Dysautonomia International and Research Assistant Professor of Neurology at Stony Brook University....
School was pretty terrible. School is the hub of our communities, and I was segregated within school. So I was therefore segregated from my community. Within school for years, people talked about me like I couldn’t understand them. And even like I didn’t exist. I was easily controlled and manipulated by adults, restrained...
As a person with ADHD I do enjoy spinning in my chair, and feel sad when it is missing. Do you think all chairs should spin so that people like me can feel happier?
"May we re-member and re-embody the knowing that resisting abled supremacy is a love practice. Reducing community transmission in the spirit of collective responsibility is a love practice that is liberatory to every bodymind where abledness is temporary. " A 2 part essay. Part2 is here:...