The weight of living with chronic illness is getting to me again. Could use some empathy from others who understand and won’t pressure me to explain what’s going on (a dozen small triggers maybe), turn it into their problems, or tell me it will get better or the worst, “Stay strong.”...
Hello everyone! This is the first post in the newly made Disability and accesibility community. Feel free to post anything health, chronic illness, disability or accesibility related. If you need a space for support or sharing your experiences regarding all of the above topics, this is the right place as well :)
Been having a pretty rough time after a psychiatrist suddenly reversed course and refused to supply documentation I need for disability benefits. It definitely feels like a very personal instance of “you’re a useless mouth and should be dead, or at least out of the system where nobody has to think about you”....
"Our study finds that 67% of individuals with Long COVID are developing dysautonomia. That’s an estimated 38 million Americans with Long COVID dysautonomia, and millions more around the world,” says Lauren Stiles, President of Dysautonomia International and Research Assistant Professor of Neurology at Stony Brook University....
I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I’ve been having severe pain in...
I’ve got a wedding to prepare for in a few months, and, let’s not gild any lilies, I’ve gotten pretty fat since I injured my right knee and hip and lost a lot of mobility. I get around with a cane most days, and running/jogging (which I used to do a lot of) is now no longer possible (although I can use an eliptical)....
Alexis Misko’s health has improved enough that, once a month, she can leave her house for a few hours. First, she needs to build up her energy by lying in a dark room for the better part of two days, doing little more than listening to audiobooks. Then she needs a driver, a quiet destination where she can lie down, and days of...
Hi everyone thanks so much for accepting me. My disabilities include fibromyalgia, ROP (I was born at 24 weeks gestation.) I’m also autistic and have hyperacusis. I’m hoping to contribute to what looks like a wonderful community....
I just called adult protective services and had a really terrible experience. I know that people are understaffed, and fed up, but it felt really dehumanizing. It feels like I took a risk to try to protect myself and improve my wellbeing, and they were just irritated with me for calling and asking for services at all....
This week I logged on to a Zoom webinar that had chat enabled. The meeting had a large attendance. The chat quickly filled up with dozens of people sharing their city or country, and later commenting on technical problems....
I love this essay and cannot recommend it enough. It’s a piece of theory that when i first read it made me feel seen and validated and politically relevant at a moment when I really felt like I didn’t exist at all. I like to reread it whenever those feelings kick back up. (It’s also definitely not only aimed at women, as...
I have a rare muscle condition, to the point where I feel like I have to be careful where I even mention it because it might make me identifiable. It's pretty lonely sometimes because of the subset of people who have this condition, most of them don't make it to adulthood and I really don't have anybody to discuss shared...
As a person with ADHD I do enjoy spinning in my chair, and feel sad when it is missing. Do you think all chairs should spin so that people like me can feel happier?