disability

The weight of living with chronic illness is getting to me again. Could use some empathy from others who understand and won’t pressure me to explain what’s going on (a dozen small triggers maybe), turn it into their problems, or tell me it will get better or the worst, “Stay strong.”...

Been having a pretty rough time after a psychiatrist suddenly reversed course and refused to supply documentation I need for disability benefits. It definitely feels like a very personal instance of “you’re a useless mouth and should be dead, or at least out of the system where nobody has to think about you”....

Post your favorite accessibility hack/life simplifying item/day brightening piece of media.

i really need a mobility device/assistive technology for my brain. like thinking sticks. wouldn’t that be lovely? we could do so much more.

Diagnoses: Autism, TR-Depression w/ suicidal ideation, chronic insomnia with delayed sleep phase, GAD w/ multiple sub anxiety disorders (including agoraphobia), IBS C & D, Fibromyalgia, BPD, C-PTSD & PTSD, Pelvic Floor Dysfunction, Overactive Bladder, MALS, Hypertension, Gastroparesis, GERD, parasomnia, RLS, Hypoglycemia,...

It says my approval is still pending and I’m not seeing new posts?

I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I’ve been having severe pain in...

web.archive.org link – excerpts follow....

I really wish all the people who decided to pretend that the pandemic is over would read this and finally understand what is at stake

I’ve got a wedding to prepare for in a few months, and, let’s not gild any lilies, I’ve gotten pretty fat since I injured my right knee and hip and lost a lot of mobility. I get around with a cane most days, and running/jogging (which I used to do a lot of) is now no longer possible (although I can use an eliptical)....

Alexis Misko’s health has improved enough that, once a month, she can leave her house for a few hours. First, she needs to build up her energy by lying in a dark room for the better part of two days, doing little more than listening to audiobooks. Then she needs a driver, a quiet destination where she can lie down, and days of...

Hi everyone thanks so much for accepting me. My disabilities include fibromyalgia, ROP (I was born at 24 weeks gestation.) I’m also autistic and have hyperacusis. I’m hoping to contribute to what looks like a wonderful community....

I just called adult protective services and had a really terrible experience. I know that people are understaffed, and fed up, but it felt really dehumanizing. It feels like I took a risk to try to protect myself and improve my wellbeing, and they were just irritated with me for calling and asking for services at all....

This week I logged on to a Zoom webinar that had chat enabled. The meeting had a large attendance. The chat quickly filled up with dozens of people sharing their city or country, and later commenting on technical problems....

I love this essay and cannot recommend it enough. It’s a piece of theory that when i first read it made me feel seen and validated and politically relevant at a moment when I really felt like I didn’t exist at all. I like to reread it whenever those feelings kick back up. (It’s also definitely not only aimed at women, as...

There is a heatwave over here, I hope everyone is surviving somehow?...

Stefanie Lyn Kaufman-Mthimkhulu began doing disability doula work long before they ever heard the term. From the time they were in middle school, they remember “being responsible for big, intense crisis situations” with their friends....

Recently I had some moderately intense encounters with medical staff, but I managed to be assertive and advocate for myself with some success. I even received actually good advice from some of them. I am feeling tired but cautiously optimistic. How about you all? Did anything go well for you recently? What was some stuff that...

With Meta’s claim that Threads will “focus on kindness,” it remains unclear how accessibility aligns with the platform’s definition of inclusivity. As CEO and founder of web accessibility company UserWay, Allon Mason, stressed, social media should be accessible to everyone, including the 1 in 5 individuals living with...

A newmembeer of the GNOME accesibility team talks about current issues and plans