@marenf@autistics.life

Moved here from social.cologne via neurodifferent.me

50yo non-conforming cis female, self-dx'ed autistic

Banner: A bright red hibiscus flower

Avatar: A cartoon picture of a white female with blue eyes, brownish half length hair and a maroon hoodie

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18+ Sci_Fi_FanGirl, to actuallyautistic
@Sci_Fi_FanGirl@hessen.social avatar

@actuallyautistic

Can anyone relate?

I've tried other stims, but I just can't stop. There are more fingers like this.

Used to "only" bite off the skin around the nails, but when I approached burnout, I started scratching and biting the lower parts of my fingers as well.

18+ marenf,
@marenf@autistics.life avatar
marenf, to actuallyautistic German
@marenf@autistics.life avatar

@actuallyautistic
Have any of you tried L-Tyrosine and/or L-Theanine to improve anxiety and memory with AuDHD? If so, how much did you take and did it help?
Any other supplements you can recommend?

marenf,
@marenf@autistics.life avatar

@Greenseer
How much are you taking?
@actuallyautistic

marenf,
@marenf@autistics.life avatar

@brainpilgrim
Thank you, will check it out!

@actuallyautistic @pathfinder

marenf,
@marenf@autistics.life avatar

@nddev
What is a "billionaire's flea market", please?
@brainpilgrim @actuallyautistic @pathfinder

marenf,
@marenf@autistics.life avatar

@nddev
Thank you! I think I get the idea 😄

@brainpilgrim @actuallyautistic @pathfinder

marenf,
@marenf@autistics.life avatar

@nddev
The links I find are all about children though :/
@brainpilgrim @actuallyautistic

marenf,
@marenf@autistics.life avatar

@bike
I have a cup of matcha every morning. For me, it's more gentle than coffee.

@actuallyautistic

marenf,
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marenf,
@marenf@autistics.life avatar

@brainpilgrim
I took 200mg yesterday (around noon) and oh boy, did it sedate me. With 1200mg I would be comatose 😂
Should be good for sleeping though.

@actuallyautistic @pathfinder

Sci_Fi_FanGirl, to actuallyautistic German
@Sci_Fi_FanGirl@hessen.social avatar

Can anyone relate?

Usually, I'm very self-conscious. But it happens from time to time, that I'm in a state of (work) flow and feel rather good about myself. Then, I'm more likely to engage in various conversations. Because I feel good, I might overshare, give advice, over-estimate my abilities or be silly. Consequently, I feel ashamed about my "outburst" and wish to never see any of them ever again. (Repeat cycle)

@actuallyautistic

marenf,
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alexisbushnell, to actuallyautistic
@alexisbushnell@toot.wales avatar

Starting to fill out my Autism triage assessment paperwork and I don't have anyone whose known me since childhood I can get to talk to them - am I already screwed?

@actuallyautistic

marenf,
@marenf@autistics.life avatar

@alexisbushnell @actuallyautistic I would assume they have a way of dealing with such cases, e.g. for people who no longer have relatives.

marenf,
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spika, to actuallyautistic
@spika@neurodifferent.me avatar

There are just some mornings where I wake up and it feels like my brain and body are ringing the alarm bells that something is terribly wrong but I can't puzzle out why I'm overcome with panic and dread.

@actuallyautistic

marenf,
@marenf@autistics.life avatar

@spika @actuallyautistic
I have this most of the time, too. There seems to be some connection to hormones and stress, but I haven't been able to pin it down yet.

obrerx, to actuallyautistic
@obrerx@neurodifferent.me avatar

@allautistics
@actuallyautistic

I'm gonna ramble a bit. I usually try to be coherent, and take my time, but I just don't even know where I'm going here just yet.

There are assumptions I see in current Mastodon discussions that are misleading or even wrong about so-called "late diagnosed".

One is that those who weren't screened as children must not be very autistic, and that these late diagnosed persons assume superiority and higher status, and then dominate spaces and talk over the early diagnosed.

Trying to get a sense of this, because I'm very late diagnosed. No doubt there is some validity to this point for some. I haven't seen it, but that doesn't mean it isn't there.

But I will say that some of these "takes" are very much like the toxic views of the "autism parents" on Twitter, who think adult autistics are all "high functioning" or not autistic at all, just people who are frauds and wannabes.

Having said that, being neurodivergent isn't new to me. I knew I was different in my early teens but saw myself as having a very different "consciousness" than others, rather than a different neurology (long story). And I was dx'd as ADHD 23 years ago, and self-diagnosed as autistic 8 years ago, and then received a formal diagnosis of ASD about 2 years ago. So is that "newly diagnosed"? Lol. I've lived the autistic life longer than most on the planet at this point. I'm hardly uneducated in the topic.

So I've known about my differences for a long, long time. ADHD is anything but "new" to me.

As to autism, I think it will always be "new" to me, and yet it will always be something I've lived with all of my life. And I've been alive for awhile.

Included either directly or by implication in some of the comments I've read is the pathologizing of autism, and separating the autistic community into severity levels, a concept that is clumsy and inaccurate, and often results in withholding assistance to those who are perceived as "mildly" autistic or underestimating and infantilizing those seen as "severe".

And it also misses the fact that people who grew up before 1980 (and especially before 1970 or 1960) would not likely be screened as autistic, and instead could be treated as a "terrible, strange, misbehaved child" with resulting parental neglect and abuse (raises hand), or misdiagnosed as any of a plethora of other conditions including schizophrenia (raises hand) or intellectual disability.

They might be hospitalized as needing in-patient psychiatric care (raises hand).

They might be terrorized by siblings (as in fearing for my life in repeated, prolonged, and constant attacks) and left to fend for themselves leading to lifelong trauma and all the self-esteem and others traits of PTSD and c-PTSD (raises hand).

Undiagnosed autistics can be treated with a high degree of neglect, misinterpretation, leading to severe estrangement from parents, and outright physical abuse by parents and siblings.

My mother was autistic (I'm quite certain). My brother was autistic (quite certain). My grandmother was institutionalized and I think that was autism.

But no one knew about autism when my grandmother and mother were born. My mother was delayed in speaking, potty training, tying shoelaces, delayed in learning to read. Because of her differences she was horribly abused by her aunt who raised her.

Oh but she was undiagnosed so she must not have been very autistic. Right?

She had no friends throughout her shortened life, although she managed to do well in college, and received a masters in family counseling from CalTech in her 40s. She spent most of her time reading, sitting in bed at night, when she wasn't teaching "educationally handicapped" children (that was the term in those days... so interesting that she chose that as her career).

She died by suicide when I was 26. I gave her CPR at 3 AM, and I'll never fucking forget those staring, dead eyes. Fuck, fuck, fuck.

That's my family life.

This is part one. Part 2 follows.

marenf,
@marenf@autistics.life avatar

@obrerx @allautistics @actuallyautistic
While I am blissfully unaware of the discussions that sparked this (and am happy to remain so), I can relate to your experience 💜
I was born in the 70s. Nobody here knew a lot about autism then. By the time my issues became unbearable in the 90s, I ended up in psychiatric care and was misdiagnosed for BPD.
On the surface I have had a successful life and career so far, but it's been though and getting tougher as I age.

marenf,
@marenf@autistics.life avatar

@obrerx @allautistics @actuallyautistic
I've been wondering what would have been different had I been diagnosed as a kid. Would things have turned out better or worse?
Alas, in the end, the question is academic as I only have this one life and can only influence the future, not the past.

ScruffyDux, to actuallyautistic
@ScruffyDux@fosstodon.org avatar

@actuallyautistic Hey people who don't live around around a Western diet, or spent time away from it, I'm super curious what your beige safe and favorite foods are.

Where I chase fries and nuggets, what is the beige food you gotta have?

marenf,
@marenf@autistics.life avatar

@ScruffyDux @actuallyautistic Does "beige" mean the actual color of the food, or is there another meaning?

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