Hi everyone thanks so much for accepting me. My disabilities include fibromyalgia, ROP (I was born at 24 weeks gestation.) I’m also autistic and have hyperacusis. I’m hoping to contribute to what looks like a wonderful community....
imma feeling marginally sorry for myself as i got my covid and flu boosters this week and the extra work that makes for my body makes it grumpy. but still, am vaxxed so that’s good....
Been having a pretty rough time after a psychiatrist suddenly reversed course and refused to supply documentation I need for disability benefits. It definitely feels like a very personal instance of “you’re a useless mouth and should be dead, or at least out of the system where nobody has to think about you”....
I just called adult protective services and had a really terrible experience. I know that people are understaffed, and fed up, but it felt really dehumanizing. It feels like I took a risk to try to protect myself and improve my wellbeing, and they were just irritated with me for calling and asking for services at all....
I’ve got a wedding to prepare for in a few months, and, let’s not gild any lilies, I’ve gotten pretty fat since I injured my right knee and hip and lost a lot of mobility. I get around with a cane most days, and running/jogging (which I used to do a lot of) is now no longer possible (although I can use an eliptical)....
The weight of living with chronic illness is getting to me again. Could use some empathy from others who understand and won’t pressure me to explain what’s going on (a dozen small triggers maybe), turn it into their problems, or tell me it will get better or the worst, “Stay strong.”...
Recently I had some moderately intense encounters with medical staff, but I managed to be assertive and advocate for myself with some success. I even received actually good advice from some of them. I am feeling tired but cautiously optimistic. How about you all? Did anything go well for you recently? What was some stuff that...
I fell down an escelator in 2015 and fractured my ankle in 4 places. Had 8 surgeries, a spinal cord stimulator, and tried ketamine infusions (had a REALLY bad reaction) and ended up having my leg amputated below the knee. Then this past December I had a total knee replacement on the other leg. I’ve been having severe pain in...
I was approved for a morphine pain pump. Went through the psych eval etc. I’m waiting to be scheduled for my trial. Has anyone had one and what’s your experience? Thanks!