Susan60, to actuallyautistic
@Susan60@aus.social avatar

Thought. I have always run warm. I do feel the cold, but not as much as most people. I hate (detest?) overheated department stores. This got worse with the onset of perimenopause, & I was unable to wear jumpers for years, because I couldn’t get them off quickly enough during hot flushes, which threatened spontaneous combustion. This settled somewhat after finally going on HRT.

I’ve noticed a change since going on ADHD meds. I now wear winter pjs on a “cool” summers night, & a nightie on warmer ones & am more likely to don a jacket of an evening.

I’m wondering whether this is a consequence of the meds, & overheating is related to ADHD. #ADHD #ActuallyAutistic @actuallyautistic #Menopause #HotFlushes #WomensHealth

KitMuse,
@KitMuse@eponaauthor.social avatar

@Susan60 @actuallyautistic Interesting. I always blamed my bad temperature regulation on my fibromyalgia, but my hands and feet are cold and within the past few years, if my hands get cold doing farm chores, then they HURT SO BADLY like stabby hurt. I keep the heat down and especially in my office cabin, on days like today (45ish) if I get cool and stay cool then I get stomach aches. I can't do heat at all anymore, but too cold is not good either. I'm like an M class planet, I guess.

PixysJourney,
@PixysJourney@beige.party avatar

@Susan60
Before I got fibro, I was always warm. Except for hands, feet and lips in winter as I have Raynauds.
But since the fibro I do feel the cold sooner and find it harder to warm up. Still, 18 degrees in winter (in the home) I wear a sweater, 18 degrees in summer, I wear a t-shirt.
Haven't been on adhd meds very long so don't know yet if they will make a difference in winter and summer. 😊
@actuallyautistic

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

A holiday tip for my comrades

You’re allowed to spend time by yourself in another room during family events.

You’re allowed to self regulate.

There is no shame in this.

@actuallyautistic

Urban_Hermit,
@Urban_Hermit@mstdn.social avatar

@theautisticcoach @actuallyautistic
Also, you are allowed to let the time you leave be indefinite, and then leave early.

lightninhopkins,
@lightninhopkins@mastodon.social avatar

@theautisticcoach @actuallyautistic for sure. Find a chill space. I do that shit all the time. You are loved always. Take a break whenever.

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What are my comrades thankful for today?

@actuallyautistic

ginsterbusch,
@ginsterbusch@kosmos.social avatar

@theautisticcoach @actuallyautistic And also having told our mother that - ie. a) thanks but no alcohols, because else burnout - I want to take care of my health and b) I dont want to be ill for 2 weeks after thanks to having aquired several respiratory diseases (eg. the flu, covid, etc.) while traveling about 1000 km across the country and back. by train. 2/

ginsterbusch,
@ginsterbusch@kosmos.social avatar

@theautisticcoach @actuallyautistic Hence I am now able to finish work till (including) Friday.

And then actualy ENJOY vacation time till the 2nd of january. Like for the first time in years to mentally IGNORE all potential work related stuff. Just relax. Do a strim. Rebuild and fiddle around computers. Maybe take a walk or two. Travel by bus to places and walk around there. All that :) 3/

autism101, to actuallyautistic

I’m rewatching Elementary and I’m on season 4 where they introduce the autistic character Fiona Helbron. While I like some aspects about the character, I don’t like the trope that it is impossible for an autistic person to tell a lie. I’m lying. @actuallyautistic

autism101,

@actuallyautistic One of my favorite Star Trek scenes on lying: https://youtu.be/EzVxsYzXI_Y?feature=shared&t=81

lkanies,
@lkanies@hachyderm.io avatar

@autism101 @actuallyautistic yeah she never passed the smell test for me, even though I had not yet been diagnosed as autistic when I watched it. She was too extreme

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

How did my comrades self-regulate before they knew that they were or before they learned healthy ways to do so?

@actuallyautistic

CuriousMagpie,
@CuriousMagpie@mastodon.social avatar

@theautisticcoach @actuallyautistic Extensive reading has been my primary go to and still is.

CynAq,
@CynAq@neurodifferent.me avatar

@theautisticcoach
I basically didn't.

I self-isolated a lot, and indulged in all sorts of stimming, self medication etc. but the gist of it is, due to poor understanding of my own brain, this all cause self loathing and depression rather than regulation.

I think I burnt out at age eleven or so and never fully recovered. I have hope for the future tho.

@actuallyautistic

Tim_McTuffty, to actuallyautistic
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 51 TUESDAY! 19/12/23

TL:DR What days is it !!; Restricting my punctuation & emoji use as I tagged one of my fave VI Peeps in todays post ! ; NMS is the bees pyjamas! ; Mastodon ROCKS !

Erm I made a small error in my @Maj1 salutation this morning . . . I may , just may , have suggested it was. . . .Monday again 🙄🤦‍♂️

Ok I fess up , I totally said it was Monday this morning - not surprisingly this caused some confusion & more than a little piss taking on my TL 🤦‍♂️ 😆

I would have cottoned on to this if I hadn’t spent the morning tiding my bedroom so that I could actually move without risking serious injury whilst chatting with CDP 🧚‍♀️ 😊 , & then the afternoon playing NMS in co-op & solo. 🤦‍♂️

I would like to say that I had a more productive day , but hey ho I’ve nearly completed the 2nd truncated NMS Expedition 😆

Had fun catching up this evening & am writing this while watching S1.2 of Red Dwarf 😊

Tracked down @FreakyFwoof after losing track of him (soz mate, totally forgot your handle and was searching for your given name - my bad 😞)
Thanks to @nellie_m for reminding me of his UID ! 🙏

Final Thoughts:

Today has been a good day , I got a bit frustrated this morning , but the more I understand my triggers the more I can apply some basic dampening on them .

I am so glad that I moved to Mastodon just over a year ago , this community is unique & if you land on the right Instances & meet the right folk it is a life changing experience !

Thanks to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you ! 🫂 🫶🐿️🖖

@actuallyautistic

Tim_McTuffty,
@Tim_McTuffty@beige.party avatar
PixysJourney,
@PixysJourney@beige.party avatar

@Tim_McTuffty
NMS is awesome, thanks to you I'm learning more about it. And having a fabulous time learning it!

Knowing your triggers can be very helpful but if people around you don't work with you to prevent them, it can also be harder. Especially if they know about them and still keep triggering you. 😔 Sending sweet Pixy hugs 🧚🏼‍♀️

Hope you will have a good night and be rested enough tomorrow for more NMS time. 🤗 🐾

@actuallyautistic

AutisticWave, to autisticadvocacy
@AutisticWave@mastodon.social avatar

While the phrase "we're all on the spectrum" may be well-intentioned, it is potentially harmful to us, autistics.

Here's how: https://link.medium.com/zjV6w9mgFFb


@autisticadvocacy @autistic[email protected] @neurodiversity

independentpen,
@independentpen@mas.to avatar

@AutisticWave
We're all a little bit autistic exactly to the same extent that we're all a little bit pregnant.

"My feet are swollen too, Marsha!"

I don't know who came up with this this first, wish I could say it were my idea
@autisticadvocacy @autistic[email protected] @neurodiversity

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my #ActuallyAutistic comrades have a carb addiction?

If so, you’re not alone.

Do you find that carbs regulate you? Or dysregulate?

@actuallyautistic

Sci_Fi_FanGirl,
@Sci_Fi_FanGirl@hessen.social avatar

@theautisticcoach @actuallyautistic I'm at my absolute best when in ketosis.

Used to be highly addicted to sugar and ate all day long, mostly carbs. Until my migraine got too bad and I was desperate.

Keto was my game changer. Today, I'm less strict, but still low carb. No sugar. No gluten. Whenever I cheat, I see immediately why it's bad for me.

f1337,
@f1337@hachyderm.io avatar

@theautisticcoach @actuallyautistic
The inflammation that comes with them is a lot to manage. But like others have mentioned, too few leaves me in a brain fog. It has taken me decades, literally, to find a balance that works for me.

Tim_McTuffty, to actuallyautistic
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 50 Monday 18/12/23

TL:DR NMS forever ! (well until I get bored with it ! ); Mrs S.s Cans have been replaced successfully ! ; Mastodon ROCKS ! @weirdfolks ROCK harder ! ; 50 DAYS !

Welcome one & all to my 50th ,consecutive, entry ! This is now , officially, the longest diary I have ever kept ! 🎉🥳🍾🥳🎉

As is often the case at the moment today has been a much better day!

Chores were done, NMS was played , both in co-op & solo & I had a lovely time on here this afternoon - I only intended to spend a quick 10 minutes around lunchtime & before I knew it it was 15:35 !

I discovered that the whole ‘over stimulation ’ thing actually applies to me . . occasionally I can have true flashes if insight within moments of learning something new , this , sadly, was not one of those moments! 🙄🤦‍♂️

Mrs S.s new headphones rocked up as promised , so they were duly charged up & paired, just in time for her to watch TV while enjoying her evening repast.

I placed them proudly in front of her . . . . “Do they work ??? “ were the 1st words out of her mouth .

I admit I was slightly short with her & possibly slightly sarcastic, because of course after her spending the day anticipating this moment I was gonna present her with a dead set of headphones ! 🙄🤦‍♂️

Hey ho.

Final Thoughts:

I am totally back into NMS & loving it - hey I know its an addiction , but it’s better than some of the alternatives !

I am especially enjoying playing it in limited co-op with CDP 🧚‍♀️, we have a lot of fun together !

A massive Thank you to those that participated in the Cake war this afternoon with @MaJ1 , I have not had so much fun in ages ! 🤗🥰

Thanks to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you ! 🫂 🫶🐿️🖖

@actuallyautistic

Tim_McTuffty,
@Tim_McTuffty@beige.party avatar
PixysJourney,
@PixysJourney@beige.party avatar
theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What would my comrades like to info dump about today?

Share with us and make a new friend :)

@actuallyautistic

aspiedan,
@aspiedan@neurodifferent.me avatar

@theautisticcoach @actuallyautistic China Mielville is an amazing fantasy/steampunk author and writes books that are brutal and vivid and the endings are nit nice and neat. Read them!!! So obsessed right now info dump over

llPK,
@llPK@mastodon.social avatar
theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades feel that they have and receive enough support in life?

What could you use?

What resources can you share with others?

@actuallyautistic

theautisticcoach,
@theautisticcoach@neurodifferent.me avatar

@aspiedan @actuallyautistic we have a place like this in Paris!

llPK,
@llPK@mastodon.social avatar

@theautisticcoach @aspiedan @actuallyautistic comment en dire trop (ou pas assez) 😄

Tim_McTuffty, to actuallyautistic
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 49 Sunday 17/12/23

TL:DR Triggers galore, with minimal chances for recover today.; Please sir can I get off now , I really don’t like this ride !

Today has been an exercise in masking when triggered.

I bought Mrs Squirrel some seriously expensive headphones to enable her to watch the TV in comfort, in the Black Friday sales.

I could go into detail here & bore the pants off you all , but the short version is that she bust them .
Me being me went thru the whole diagnostic routine TNA ( to no avail - sorry couldn’t resist ) .
So I set up an online chat session with the company I bought the headphones from , they were initially prepared to refund the price paid, but not replace the headphones , which are now considerably more than I paid in the sale !
When pressed they offered me the manufacturers details and suggested that I pursue the manufacturers for a replacement.

I this point a major trigger hit - I was already stressed by the situation & by the chat , now they wanted me to approach a 3rd party!
My brain at this point just decided this was unacceptable !
I told the Rep that I was autistic & suffered from PDD & I just wanted the refund, I also mentioned you lot & said I would recount the story . . . oh the power of SM ! I ‘forgot’ to mention that I am a squirrel on here , but hey all is fair in love and capitalism! I merely said I had a 1000 followers - which is true across the 2 accounts! No lie no foul !
Yon rep put me on hold for 5 minutes & when he came back all of a sudden a replacement was on the table 😊
So new headphones en-route as we speak, due tomorrow !

In the background while all this is going on Mrs Squirrel is trying to organise a Sandwich Platter for what is now a traditional buffet lunch at her Mums that your’s truly puts together.
I have been perstering her since October to do this ! Not surprisingly on the Sunday before Christmas such things are few & far between & our regular supplier was unable to help!! 🙄🤦‍♂️

Triggered again , I held in all the frustration & made a mental note of all the extra effort I now have to put in because I was ignored - again!

Some light relief came for an hour or so playing NMS with CDP 🧚‍♀️, I had arranged to spend the whole morning playing co-op with her , but that had to be vastly foreshortened due to the headphones saga !

After tea I went to try & pause the DVR from my phone app to go to the little boys room - no joy . Mrs Squirrel also had no luck trying to use the app on her phone - I was just about to go into full meltdown when I looked round to check the IR sender linked to the app & discovered it was hidden behind a Christmas card !!
Now the discussion has been had about said sender that it be neither moved nor blocked! Apparently Christmas cards are IR transparent …. in the same way that you can catch COVID from 5G transmitters! 🙄🤦‍♂️

Final Thoughts:

Nuggan save me from folk with the technical capabilities of a small sprout!
If you are reading this then you already surpass that level & thusly stand high in my regard!

So the day ends with me sitting on a mound of frustration that I cannot get rid of easily , An 8 legged monster from the deep has helped a little , but only a little as I don’t fancy a massive hangover in the morning! .

I may put my normal sleep pattern on hold tonight & play NMS until I fall asleep thru exhaustion at around 2am.
This will bugger up tomorrow , but none of the alternatives are any better & some are noticeably worse.

EDIT: I am mentally & physically shagged, the NMS marathon may have to be put on hold.

As I have said before, this is a diary, not a plea for help or sympathy , it is simply a brain dump to try & help me, & maybe others make sense of this game called life !

I cannot even analyse how much of this is ASD, or PDD or just an NT reaction .
The comms side is defo ASD, as are the high frustration levels at fairly minor events.

Thanks to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you ! 🫂 🫶🐿️🖖

@actuallyautistic

DoubleTreble,
@DoubleTreble@cupoftea.social avatar

@Tim_McTuffty @actuallyautistic
Thank you, chores done!
Really should wrap some prezzies for the weekend.......
Cuppa and crochet 🧶 first though

Tim_McTuffty,
@Tim_McTuffty@beige.party avatar

@DoubleTreble @actuallyautistic Sounds like a plan sweetie !

Be careful wrapping my nuts ! (Brazil nuts !!! SMH )

have a lovely afternoon 🤗🥰

theaardvark, to actuallyadhd
@theaardvark@mastodon.me.uk avatar

Hello peoples....
My GP has given me an Adult "ADHD Self-Report Scale (ASRS-v1.1) Symptom Checklist" as part of trying to get medication prescribed.
Some questions ask about social interactions, but my answers will be impacted by my ASC1 ( ) traits (Questions 15, 17 and 18 just seem like they would be too rude to do.)
Is that likely to impact my NHS diagnosis?

@actuallyadhd
@actuallyautistic

theaardvark,
@theaardvark@mastodon.me.uk avatar

@shadowcheets @actuallyadhd @actuallyautistic

It maybe that these things are taken in to account when reviewing the checklist, but it could also be that I don't get the medication I'd like to try because the AuDHD symptoms don't match their (I worry) simplistic definitions. Gaah!

peterdeppisch,
@peterdeppisch@mstdn.ca avatar

@shadowcheets @theaardvark @actuallyadhd @actuallyautistic
I find these tests confusing - always have.

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

What does the term “unmasking” mean to my #ActuallyAutistic comrades?

#AskingAutistics @actuallyautistic

independentpen,
@independentpen@mas.to avatar

@theautisticcoach
It's the way I am around animals
@actuallyautistic

CynAq,
@CynAq@neurodifferent.me avatar

@EVDHmn @theautisticcoach @actuallyautistic no misspeaking, nothing to forgive 😊

Just wanted to put your mind at ease. Because you cared, I cared back.

theautisticcoach, to actuallyautistic
@theautisticcoach@neurodifferent.me avatar

Do my comrades have a good relationship with their families of origin?

@actuallyautistic

zigi_now9,
@zigi_now9@neurodifferent.me avatar

@theautisticcoach @actuallyautistic Mine is not perfect, but good, especially when compared to many other Autistics' sadly.

alexisbushnell,
@alexisbushnell@toot.wales avatar

@theautisticcoach @actuallyautistic LOLZ! Nope. My mother is an emotionally abusive alcoholic.
As much as I love him, my step dad enabled her.
My dad, who I did get on well with, died when I was 14.

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